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Hi everyone,
Following information from UK Government and the publication of NICE guidelines, we have updated our advice on the coronavirus for people who have received or are waiting to receive a stem cell transplant to treat their blood cancer or blood disorder. Read our coronavirus guidance here: www.anthonynolan.org/coronavirus

Hayley_Anthony Nolan

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Hayley_Anthony Nolan
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  • Hello Katie, Thank you for your post, I am the lead nurse in patient services. I am sorry that your son has BK virus, this is one of the more common viruses experienced after transplant and as your son is experiencing can be painful and uncomf…
  • Hi Mel, Thanks for this post of a very logical question. You are right that it is a balancing act between allowing the new stem cells to grow and so increasing white blood and neutrophil counts etc. to reducing the risk of severe GvHD. It might n…
  • Hi Mel, Thanks for your post, I am the lead nurse at Anthony Nolan. It can be confusing when we talk about what levels the bloods need to be but you are on the right track. Normally the white blood cells are the first numbers you look at because …
  • Hi Julie, Thanks so much for posting on the forum, I am the lead nurse in the patient services team. I can only imagine how daunting it must be as a parent when you have a child having a stem cell transplant, the information that you are given…
  • Hi Chris, Thanks for your question, I am the lead nurse in patient services and I just wanted to add to Clare's response. I realise its difficult to know what to do to get specific advice. Without knowing how far from transplant you are there are…
  • Hello, I am the lead nurse in patient services thank you for posting. I am sorry that this was not explained to you and understandably you feel anxious about what this means for your husband. Very early after transplant bone marrow samples are ta…
  • Hi Georgie, Thanks for posting and I am glad that you feel well. I am the lead nurse in patient services. When having DLI it's normal to feel no different and we would not necessarily expect you to become unwell. However as you have had an inf…
  • Hi Dannii, Thank you for the updating. I am sorry that you are still no clearer to the cause of the mass, it must be a worrying time for you all. Lymphoblastic lymphoma is similar to acute leukaemia and the only way to get a full picture and d…
  • Hi Dannii, Thank you for posting on the forum, I am the lead nurse in patient services. Its very encouraging that all his bloods are good and despite having some GvHD, which we know can be a problem post-transplant, your brother sounds like he…
  • Hi Thanks for the update, I am sorry that it continues to be tough for you and your son, he has certainly had a really challenging year. Its incredibly difficult when progress is slow and you feel stuck in a cycle. You are doing an amazing job to…
  • Hi Trudi, Thanks for posting, I am the lead nurse in patient services. I am sorry that you have RSV, it is an infection that can make you feel washed out for a period of time and is one of the more common respiratory infections we see post transp…
  • HI Rob, I hope you have had a nice Xmas. I am sorry that you have had shingles, as you have experienced it can often be very painful. It is one of the more common viruses that can occur after a transplant even as far out of transplant as you are …
  • HI, I am the lead nurse in patient services. Steve is absolutely right that its important that your sister has contact with her children and as long as they are well this should not be a problem. Its really important to keep life as normal as pos…
  • Hi Geoff, Thank you for posting on the forum, I am the nurse in patient services. I am sorry that you are having such a difficult time with myopathy, it is a side effect of long term steroids that can have a real impact on quality of life. It wou…
  • Hi, I am sorry that he is having a difficult time. GvHD can be very challenging not only physically but mentally as well. GvHD will be something that the transplant team will be looking for and is a good sign that the top of of cells is working…
  • Hello, I am the nurse in patient services at Anthony Nolan. Thank you for posting on the forum, It is very normal for counts to fluctuate after a stem cell transplant, D35 is very early and it is expected that counts will go up an down for a wh…
  • Hi, Thanks so much for updating us, its great news that your son is doing well. Please send him our best and keep us posted on his recovery. Best wishes Hayley
  • Hello Thank you for posting on the forum at such a very difficult time. It is so hard for everyone but carers often feel like they have to hold it together. Its so important that you get support too. You are very welcome to call us here in the…
  • Hi Rob, I am sorry that you have been having pain with your joints. This can be a symptom of GvHD but unless you have had this before or you have chronic GvHD in another organ it would be unlikely that it would randomly occur now. If it was acute…
  • Hello I am the lead nurse in patient services, thanks for posting. After a transplant chimerism can fluctuate a little bit especially in the in early period as the new immune system is growing. As your son had his transplant in January this would s…
  • Hi Gabby I am the lead nurse in patient services, thank you for your comment and I apologies for the delay in responding to you. Recovering from a transplant is challenging and the regular appointments can definitely add to the fatigue, especiall…
  • Hi Thanks again for posting, I am glad that Diego has responded well to his treatment and is in CR. It appears that you have a plan to go ahead with the transplant soon so being prepared for what to expect is very sensible. I hope you were able …
  • HI I am the lead nurse in the patient services team, thanks for posting. You are in a difficult position wanting to give your teen space but also keeping a handle on what is happening, I am sure its a common experience for any parent of a teenager…
  • Hi Jhon Thanks for posting, I am the lead nurse in the patient team. I am sorry that your son has been diagnosed with ALL, it must have been a shock for you all. I am glad that he is responding to treatment and you have a plan for the next stage of…
  • Hi, thanks for posting, I am the lead nurse in patient services. I am sorry that you have concerns with lung GvHD. The transplant consultant should be able to refer you to a lung specialist (respiratory consultant) who is knowledgeable about lung Gv…
  • Hi Linsaylou Thanks for posting and being so honest about how you feel. It is very normal to feel the way you do, its a scary and daunting time for you and your husband. When I have spoken to patients and families about this they often say that the…
  • Hi Cellbydate You seem to have a good understanding of what is happening so hopefully writing the post has helped make it all a bit clearer. The other thing to add is that all the while your immune system is trying to get stronger, its been suppres…
  • Hi Pete I am the lead nurse in patient services, thanks for your post. It can be normal to have aches and joint pain 2 years post transplant but it will depend on some factors. Such as your age, the treatment you have had, experience of GvHD, use o…
  • Hi I am sorry that the counts still have not picked up. Having 2 viral infections with adenovirus and CMV along with treatment will affect her very immature immune system. Even when the antivirals stop and the levels for the virus decrease it can s…
  • Hi Cellbydate I just wanted to add that everything you are feeling is normal, don't give your self a hard time but like Greg suggests also try and focus on how well you are doing. Neutrophils can fluctuate, its still early post transplant, you are …