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Pamclugston
Comments
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Thanks Steve and Hayley for your comments. It is good to get clarification on this as y husband was quite giddy on receiving this news. I know it's baby steps at the moment but he has felt so uplifted since his appointment. It is really good to see him this way. Will post again on any developments. Thanks Pam
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Hi Kate My husband was also diagnosed with AMPL. He had an auto but relapsed 9 months later. He has just recently had an allo from an unrelated donor. He initially felt quite well but has just developed Skin GVHD. His consultant sees this as a positive. I hope your transplant goes well and your remission period is good. My…
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Thanks Steve for your support and comments. I spoke today to his transplant team and they have suggested that some support may help him to come to terms with things. At the moment he is having really bad hallucinations and is afraid to sleep. This is obviously medication related but because of what is going on with family…
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Thank you Steve and Haley for your comments and advice. I think I will ask he transplant specialists for support. My husband is feeling very poorly at the moment day + 10 but his nutrafils have risen from 0.02 to 0.04 today. He has a spiked temperature extremely sore mouth and throut and a really bed stomach. He is so weak…
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Hi sue thanks for your comment. He is in a very dark place at the moment (his words). I find him quite snappy but that has a lot to do with how is feeling physically. We must remain positive. Thanks Pam
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Thanks all for your comments and reassurances. At the moment he has chronic stomach pain and associated problems. Also a sore through the. The medical team are fantastic and have assured him that this is normal and good progress is being made + day 6. It is difficult watching him suffer like he is but over the past 30…