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Jayne
Comments
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You're welcome Rob. x
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Hi Rob...just as an afterthought. The meditating cd I bought was done by buddhist monks, but since then I have discovered a lot of apps that you can download onto your phone or laptop. A particular favourite of mine is Headspace - you get a 10 day free trial. A couple of others worth a mention are Buddhify and Smilingmind.…
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Hi Rob I had a transplant in July 2012. I was diagnosed with MDS in 2011 and it rather quickly developed towards AML. I had my transplant at St James, Leeds so I can not comment on your choice of hospital, only to say that Leeds was my closest and still an hour away. My husband came to see me every day, and my children…
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My tips! (as already shared with Amy, but I thought would be good to put here). 1. make your room homely. Put up cards, have cushions on visitors chairs. 2. although you can not have fresh flowers you can have artificial flowers and again these help to make your room homely 3. if allowed, take your own bedding 4. Have a…
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I just told people! They knew I was ill, they knew my immune system was compromised so they accepted it. I didn't have any family or friends who had sniffles/colds/illnesses even want to come and see me, they knew to stay away. I also told my brother I was unable to see my niece and nephew for 100 days (this upset me). We…
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I didn't put weight on prior to transplant, and I also didn't lose any weight whilst in hospital. I spent 2 x 4 weeks treating AML and then a further 4 weeks for my bone transplant. I was actually about 2lb heavier! I think you need to be a healthy weight, but able to lose a stone even if you were well without it having a…
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I was slightly concerned about losing my hair, but when it happened I didn't care. It was just another step towards getting well. I did get a wig, but somebody said I looked like Ruby Wax and it put me off it, I never wore it again! I was happier wearing hats, I bought loads! They were very pretty and I quite enjoyed…
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I am not on cyclosporine any more, but because I had TBI I have been told to wear factor 30 as a minimum and factor 50 preferably. I am allowed to be in the sun as long as I take precautions not to burn. This is because I have a slightly higher risk of skin cancer due to the radiation. I am booked to go to Majorca this…
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I often wonder when 'normal' returns. I am 18 months post transplant. I think about my transplant and my health every day. I am still having a bit of treatment, lymphocytes every 3 months which I guess doesn't help the thoughts of being 'ill' go away. I don't feel ill. I do like to sleep and if I have a few busy days I can…
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Going through this illness and treatment when you have children is a mine field. When I was diagnosed my daughter was 13 and my son 15. When I had my transplant they were 14 and 16.....it was my son's GCSE year. I was in hospital for 3 lots of 4 weeks between mid February and mid August....all of his revising time and his…
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I like hearing peoples stories....especially the good ones! I'm currently 18 months post transplant. I have literally just arrived on the site, so I will have a look around and post!