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Mel

Hello again, I am wondering if an autologous transplant in a 40 year old is likely to be similar to an allogenic transplant for a 70 year old. My husband had the latter and my son is facing the former. I would like to be reassured that autologous is likely to be less onerous. I believe some people recover much more quickly .....and profoundly hope so. My husband's transplant was 2yrs 2 months ago and he is now doing quite well but it's not been plain sailing andthere are still ongoing issues and concerns . I want to believe my son will recover more quickly and better - without the GvHD but also the rest. I just read one post which said the patient recovered in 16 days.....could this really be even possible? Hopefully, Mel

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Mel
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  • Thank you, Rachel for this reply. It has been most helpful. Not least because it has enabled a conversation and a bit more co-operation at home!! He's even agreed to the suggestion of an antacid. He took one dose a couple of weeks ago and declared it hadn't helped but has agreed to try again [I see it should be avoided for…
    in Indigestion Comment by Mel February 2023
  • He's doing well thanks, Steve. There remain limitations on his activities - cognitive and physical but we hope this new suggestion will help on both fronts. We expect some thing to remain relating to his kidneys, gut and skin [and, I suspect, some cognition difficulties] but we're grateful for every day we share. It's just…
    in EPO Comment by Mel March 2022
  • Hi both - I am continuing to process these things but in the meantime wanted to thank you both for your feedback. Your insights Steve, into your experience, are particularly prescient....things to ponder... Stay safe, one and all; and many thanks again, Mel
  • Thanks AH67 for this. It helps to have some idea of time-frame when things are as serious. ..as well as further insight into how incredible the body is [and our amazing doctors and nurses!]. Thank you for your good wishes too.....keeping hoping! Mel.
  • Thanks Tom, I've now been able to access the letter and see it's content...thank you both for getting back to me so quickly. I'm also much reassured by your response, Michelle..I'm repeatedly struck by what extraordinary things the human body and chemistry are as well as the extraordinary skills of the people trained to…
  • Hi Hayley, I am just catching up on things [takes a while!] and see I never acknowledged your very helpful reply to my question which has been very supportive during the time since my husband's transplant. We both take a close interest in the blood results and drugs movements, and this helped us appreciate the reasons…
  • Thanks, Michelle, for your reply. As you say, it's the changes that get me ...every time.... He had his infusion yesterday along with electrolytes which are out of balance. It was a l-o-n-g session, but all done now and no immediate problems, which is a relief! Very grateful to the staff who stayed on at the end of their…
  • Am trying to find the letter referred to in the post above about what action a medical team is likely to take on neutropenic sepsis. I'm quite surprised that there is any general procedure. Maybe anything else helpful, too. I'm heartened by the following posts to see that it is at least survivable! My husband is currently…
  • Hi Laulau1 - it does sound okay. This will be by infusion which we've been warned will take a few hours [possibly with the addition of electrolytes] but all the same, thank you for sharing this - it's reassuring to hear your experience. .
  • Hi Steve, Thanks for this - yes, the GvHD on my husband's skin is relatively mild but extensive and the creams are an attempt to stop it getting too much of a grip, prescribed by his medical 'team'. You're spot on with your description of the deep fried chip - exactly how he feels though we're focusing everything on what's…
  • That's definitely a good idea and is on our agenda for the future. For now. a practical question for anyone out there - hopefully this will appear somewhere appropriate: I'm in need of some help with laundry information. We are making six applications a day over 90% body area of creams. One is Enopen, mainly I think liquid…
  • Just saw your post, AH67 - thank you so much. Particularly ...well, each paragraph really. ...Absolutely on the spot. Thank you too for your wishes - there is some improvement in that hospital visits [Day 61] are down to once a week ; some days are harder than others but I am beginning to get the hang of seeking out…
  • Thanks, Steve - and for your wishes for my husband - I'm thinking a sharing of ideas as much as offloading concerns.....Admittedly I'm finding today slightly easier with the ambient temperatures falling a little and have stolen 10 mins for an exercise routine! I have sent a further and fuller response through the 'contact'…
  • Perfect. Thank you, especially for quick response.
  • Thank you both for your thoughtful and insightful responses – I am very grateful and certainly feeling more supported today, reading them. We are at least now organising things my husband can look forward to doing when he comes home from hospital afterwards which helps.. [he's keen to revisit model making since life-size…
  • Thank you Rachel and Steve for your responses. Feeling a bit glum today so logged on and am grateful to see your comments. Steve , I love the story of how you came by your Dieseldrinker handle which I saw somewhere else on the site, by the way! Thoughts of the forthcoming STC are challenging and I mostly manage to keep the…