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  • Hi all, Shortly after my transplant in 2014, I sent a thank-you letter to my donor (via my CNS at the hospital). A couple of years later I sent another card (via CNS/AN), but did not receive a reply, so thought my donor just wanted to remain anon…
  • Hello Lyndsaylou, I am sorry to hear that your husband has developed oral GvHD. From my own experiences, oral GvHD started 6 months after my transplant. Firstly, the inside of my bottom lip blistered up, then shortly after that the whole of my…
  • Hi Nigel, I did have altered food taste for a short while post chemo/SCT (I couldn't eat carrots or tomato soup in particular!?). I also could't eat spicy foods or citrus fruits, however this was due to mouth gvhd & ulcers. 5 years on s…
    in Taste Comment by NeilSal June 2019
  • Hello Jhon, My story is similar to Tony's. I was diagnosed with ALL (Philadelphia positive) in November 2013 when I was aged 39. I underwent 3 rounds of chemo at St Barts Hospital, before going straight for a SCT in April 2014. My unrelated donor …
  • Hi Paul, welcome to the forum. I'm 4 1/2 years post SCT following treatment for ALL, so just a year behind you. I'm glad all is fine with you and that progress is going in the right direction. I'm doing pretty well but still go to St Barts hospita…
  • Hi Lindsay, Yes of course, you can contact me and I will be pleased to help answer your questions/queries. I hope your husbands conditioning treatment goes to plan on 14th September. Chat again soon, Regards, Neil
  • Hello, I echo the other comments and am sorry to hear about your friend. I had fellow patients who passed away after their SCT in 2014. This upset me and I was worried what the future held for me personally post SCT. You mention that your doctors …
  • Hi Rachel & Steve, Many thanks for your welcome comments. I still have chronic GvHD effecting my mouth & eyes, but you just find a way to live with it and manage it. The hospital monitors the issue anyway through regular check-ups. I don'…