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Anthony Nolan Patients & Families Forum

If you or your loved one is affected by bone marrow or stem cell transplant – this is the place for you. Connect with other patients, share experiences and support.

Discussion	Started By	Replies	Views	Most Recent
Have you experienced chronic graft vs host disease (cGvHD) following a stem cell transplant, or care in Long-term recovery Announcement	Liam_at_AnthonyNolan June 1	2	17	Liam_at_AnthonyNolan June 1
Levels slowly dropping after 2nd transplant in Early recovery Answered	Beaglegirl May 25	4	46	Rachel_LeadNurse June 1
Weight loss suddenly 8/9 months post transplant in Early recovery Accepted Answer	Calum96 May 15	2	57	Calum96 June 1
advice on greater fatigue, rash and low immunoglobulin in Long-term recovery Answered	Will May 24	1	21	Rachel_LeadNurse May 31
2nd Transplant and my daughter is so ill 1 2...10 11 in Help	Auds21 July 2022	319	3.3K	Michelleanne May 30
Chronic gvhd in Long-term recovery	Hollintree March 2022	26	584	DaveT May 30
A two month old baby needing transplant in Pre-transplant	MaggieMoo May 18	5	55	HelenSpeedwell May 29
Long term prophylactic antibiotic therapy in Pre-transplant	Meerkat May 26	0	20	Meerkat May 26
MDS relapse..second transplant? in General advice	Tallgal July 2019	6	737	Tallgal May 22
Failed transplant in Partners, friends & carers Answered	Suedb May 5	4	126	Suedb May 22
Travel insurance in Early recovery	Laulau1 May 19	1	32	Meerkat May 20
Partner Passed away after SCT in Partners, friends & carers	popcorn28 January 9	9	540	Sputnik May 16
Food allergies post transplant and DLI in Long-term recovery	Confusedlady May 9	1	31	Dieseldrinker62 May 11
Very poorly after 2nd transplant in Early recovery	Beaglegirl May 6	1	52	Suedb May 8
Autism and stem cell in General advice Accepted Answer	Kawazi April 14	1	44	Tom_AnthonyNolan April 17
Help with frustration with fatigue and muscle weakness in Long-term recovery	Michelleanne February 28	7	202	Michelleanne April 5
Availability of Jakavi (Ruxolitnib) for gvhd in UK in Long-term recovery Accepted Answer	DaveT March 23	16	105	DaveT April 5
Pneumonia +141 post 2nd a transplant in Early recovery	Beaglegirl March 24	3	88	Tom_AnthonyNolan March 29
Finding Dasatinib hard to tolerate post transplant! in Early recovery	Calum96 March 27	2	50	Calum96 March 27
facial hair in General advice Answered	Ainiti March 14	4	91	HelenSpeedwell March 23
Big decision and confused in General advice Accepted Answer	JohnShapter March 14	6	190	JohnShapter March 18
Covid Vaccination Post BMT in General advice Accepted Answer	Atraynor March 13	2	84	Atraynor March 13
Yellow fever vaccine in Long-term recovery	Rach November 2022	2	75	AnniC March 7
Resources in Long-term recovery	HelenSpeedwell March 3	1	55	HelenSpeedwell March 3
Day +15 no neutrophils in General advice	LesleyB March 1	2	133	DaveT March 2
Indigestion in Partners, friends & carers Answered	Mel February 26	2	77	Mel February 28
Platelets gradually droppjng in Early recovery	Beaglegirl January 27	5	252	HelenSpeedwell February 26
My eldest daughter has aml 1 2 in Welcome	Adelaie January 19	40	507	HelenSpeedwell February 26
Appetite recovery in Long-term recovery	DaveT October 2022	19	324	DaveT February 20
ECP and gvhd skin 1 2 in Long-term recovery	HelenSpeedwell October 2022	49	531	HelenSpeedwell February 7