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river7
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Josh, there are several cancer charities that are aimed at teenagers and young people,shine and clic sargent being two that I know of. Google them and see if perhaps even joining their facebook page would help you connect with some of your peers who are maybe going through the same things as you. Walking is great for your…
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Thanks for that, Peter
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Hi Claire, Wow,what a story! You certainly had a roller coaster of a ride through your illness. So glad you made it and that you had the strength and determination to keep going,you must be destined for great things having survived all that! Best of luck for the future and hope the return to work happens soon , Una
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Well,my obvious advice to you Claire,is don't drink! Your body obviously isn't coping with it. Know you probably think that is easy for me to say but what's the point if you are making yourself ill after all you have been through ? There are some non alcoholic beers on the market which aren't too bad . Better talk to your…
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Hope all went well in Germany,I can only imagine how you both must feel. I imagine she will be very humbled in meeting you ,it will be a surreal experience for you both. Enjoy the moment . Una
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So glad to hear that you are back to having a good life after all you have been through. You must be very strong,mentally,to be able to keep going through all that.Manys a person would have crumbled. Hope you have many more years of a healthy,happy life,you deserve it!
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This sounds like a great idea ,Peter. You sometimes don't realise how far you have progressed until you see someone who is further back in the journey than you are. My husband has offered to help mentor anyone who is going through a transplant but it is not encouraged in his unit. Will mention it in Belfast transplant unit…
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Welcome Peter !
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Andy,you need to ask either your G.P. Or someone on your transplant team about this. I googled side effects of clarothamycin and they include the possibility of skin rashes or hives,so you might just be experiencing a side effect to that drug. Again,if you are worried seek medical advice to help put your mind at ease.
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Every morning my Husband listened to Cat Stevens singing 'morning has broken' just to remind himself that he was still alive and it was a new day. Must admit ,it began to grate on my nerves as he played all three verses but whatever helps,I suppose.
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Don't see why you should,after all National Health will cover you throughout the U.K. Only take it out if you are worried about having to cancel your holiday,you will be loaded due to your illness and transplant so get quotes and see if you think it is worthwhile. If you have problems getting travel insurance contact…
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Just wait until you get menopausal !! Lol
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Good news Petervee!
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Should have mentioned,he is now seven years post transplant .
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My husband is off cyclosporine for years now but still covers himself in factor 50 when in the sun and avoids midday sun. He was told recently that as his immune system had 'taken a hit' he was to be careful as he was more susceptible to skin cancer. He always wears a hat and we don't holiday abroad in the summer.…
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Good to hear from you,Peter,and also good to know that you are doing so well. My husband still finds himself getting fitter even now. He was very fit before his illness but it stood him in good stead throughout the transplant process,he even got the nurses to bring him an exercise bike into his hospital room after his…
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My husband hated pickles before his transplant but after he recovered from it,he developed a strong liking ,but not a craving, for pickled gherkins . Turns out that his brother who was his donor loved them! Maybe there are taste buds in bone marrow ! lol
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Hi, I would think that you would be better to wait for at least a year and then ask your medical team for advice before getting one. Everyone is different and they will know how strong your immune system is,no point in risking your health unnecessarily now that you are doing so well. Hope this helps .