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Mandy_22
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Thanks Steve and E Dawson My brother has never really been a sun worshiper kind of guy which is a bonus. So basically it's take the precautions as much as possible especially in early days though he isn't in the drug mentioned but he was wondering if there comes a time when the skin becomes more tolerant (for want of a…
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Hi all, My brother is doing quite well generally so all heading in the right direction! We were just wondering as he tries to get out for short walks as much as possible is there anyone out there who may have had any problems with sunlight and how it has affected them immediately after sct and longer term? We are heading…
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Thanks Hayley, My brother is doing ok generally and as we are aware things will be a slow pace of recovery but like you say the eating well and trying to keep moving as much as he can is a very important part of it all. On a good note his headaches have improved and there has been talk of him maybe coming out of hospital…
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Hi Steve That's the headaches seemed to have subsided some what now thank goodness. I do think you are correct that it could be all part of the fatigue he is experiencing and he is trying to keep hydrated and eating as much as he can to keep his strength up to aid his recovery. He is doing ok thanks Steve so slowly day by…
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Hi all, Luckily my brothers headaches seem to be subsiding slowly so let's hope it will continue! He looked a little brighter today so that's great to see even though early days. Onwards and upwards hopefully! Thanks so much to Anthony Nolan
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Thanks Steve yes it wasn't the starting block we were expecting. However as long as it all goes kind of to plan now we can cope! He's doing well considering what he has been through so we will focus on the steps forwards and support him along the way. Just a quick question did anyone suffer headaches that came on sudden…
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Hi all, Well it's been a bit of a rocky road so far for my brother he was doing so well the week and half in hospital leading up to his transplant and then everything changed as his temperature spiked on Good Friday and they have said he had a brain seizure, which basically ended up with him being rushed into critical care…
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Thanks Chiara I will keep you posted on how he goes on, we know it's a long road ahead but we are hoping all issues he encounters will be able to be overcome eventually. We really did get a lot from the Education Day and really appreciated the friendly warm welcome from yourselves. I would recommend it to others in the…
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Hi Steve, Yes it was a beneficial day for us to be able to speak to people who were 'old hand' and we did pick up things we hadn't heard before so it all helps in this long road ahead! I must just mention how great Ciara and Hayley were too, so much knowledge and so professional but also with a kind,warm and caring manner…