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Rachel_LeadNurse
Comments
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Hi Auds21, I'm Rachel- Lead Nurse here at Anthony Nolan. I'm sorry to hear that your daughter has had this complication arise, it must be a very difficult time for you all. Unfortunately graft failure is a risk associated with stem cell transplant and whilst not very common is something that can occur, often with no…
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Hi Babs, I'm Rachel, Lead Nurse for Anthony Nolan. I'm sorry to hear that your daughter is having these problems following her transplant, from what you describe she sounds to be experiencing side effects of chemotherapy/transplant that are less common than mucositis alone. As you will likely be aware, mucositis occurs as…
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Dear Beaglegirl, I can only imagine how difficult this time must be for you. It sounds like a further meeting or discussion with your husbands Consultant or Nurse Specialist would be beneficial to help you (and your husband) understand what is happening. If reaching the Consultant is proving difficult, could you make…
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Dear Beaglegirl, It's no problem to post your questions here, getting first hand experience from other patients can be incredibly useful in answering your questions but you may also wish to call our helpline: 0303 303 0303. I and other members of our patient services team man the phone lines 9am-5pm, Monday- Friday- you…
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Hi RichF, I'm Rachel- Lead Nurse here at Anthony Nolan. I appreciate you are asking for direct experience from others who have been through re-vaccinations but I wanted to just pop a note up to reassure you that the re-vaccinations shouldn't cause any significant side effects other than an achey/heavy arm and possibly some…
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Hi Beaglegirl, I'm Rachel- Lead Nurse at Anthony Nolan. I'm really sorry to hear of your husbands recent diagnosis, I'm sure its been difficult to come to terms with, for you both. Unfortunately a secondary cancer developing after stem cell transplant isn't uncommon and whilst treatment received previously (for the…
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Hi Hollintree My names Rachel, I am the Lead Nurse here at Anthony Nolan. Thanks for posting to the forum to ask for advice, this is usually given by individuals who have been through transplant or supported others who have, but I wanted to make contact as you mention your Mum is having problems with breathing and chest…
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Hi @Moirplace, I'm Rachel- Lead Nurse here at Anthony Nolan. A mixed chimerism is not an unusual scenario but, as you state, the continued monitoring of the chimerism is really important post transplant. From what you have stated in your post, the ABO mismatch that has occurred between your daughter and her donor is a…
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Hi Kirstine, I'm Rachel, Lead Nurse at Anthony Nolan. Sorry to hear your husband has had such a difficult time following his transplant. I can see that Chelle has already given you a comprehensive answer about the process of a 'top up donation' which is different to a Donor Lymphocyte Infusion (DLI) that you, or others on…
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Hi Lynsey, I'm Rachel, Anthony Nolan Lead Nurse. I'm really sorry to hear you're having a tough time with you GvHD, it can feel like a hard slog when none of the treatments appear to be working. I wondered if you'd like to chat further on the phone? You can call the patient services helpline 0303 303 0303 and ask to speak…
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Hi Lucyh1234, I'm Rachel, Lead Nurse for Anthony Nolan. I've read through the forum thread and its clear you've been given lots of great advice from others on here. It's also great that you've highlighted the issues with your skin to your clinical team and that you've started some treatment for it. It's not uncommon for…