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Recent Activity

  • NEEDABREAK7 joined.
    Welcome Aboard!
    July 28
  • patrickamos joined.
    Welcome Aboard!
    July 19
  • Hi Laulau,

    Hope all's well. Thank you for your message.

    I would recommend you check with your healthcare team before taking an antibody test. They will ensure you take a test that will give you a useful and relevant result when trying to determine the level of protection you have from COVID-19.

    Blood Cancer UK has some updated information about antibody testing here which you might find useful: https://bloodcancer.org.uk/news/covid-vaccine-should-people-with-blood-cancer-get-an-antibody-test/

    As always, please feel free to ask other patients on the Forum where they obtained their tests if you want to - but I would recommend you first check in with your healthcare team about this, if you have not already done so.

    All the best,

    Tom

    July 19
  • Laulau1

    Hi Tom

    I hope you are okay.

    Do you know how I can get the Roche covid2 sars test for antibodies.my hospital just tested for bcells.

    Many thanks

    Laulau

    July 18
  • Thanks Michelle. I'm very anxious about Monday. We just adopted a pet cat he's a rescue and lovely. How are you?x

    July 18
  • chelle_16

    Hi Laulau

    The tes i did was

    Roche Anti-SARS-CoV-2 (S) Test

    How are you?

    Michelle

    July 17
  • Laulau1

    Hi Michelle

    How are you doing? I'm trying to carry on as normal as possible. I had another antibody test for covid antibodies still none showing. my chimerism close to 100% one 99% and I'm on immunosuppressants just gone down from three to 2 times twice a day.

    Best news is we have a new furry friend Teddy the cat who been with us since Sunday. I adore him. I've recently joined RHS as they have some lovely gardens to visit and been doing some strawberry picking at local farm.

    My consultant was talking about getting the covid booster vaccine in September when it starts and maybe having different one ie Pfizer to see if that makes a difference.

    Have you had a antibody test?

    Take care

    Lau lau x

    July 9
    • chelle_16
      chelle_16
      Hi Lau Lau

      Great to hear from you. The news you shared on the forum recently made me smile. None of our journeys are smooth and i know it took a long time to figure out the right treatment for your mouth sores/gvhd.

      To hear of your chimerism levels too👏🥳. I hope with the reduction of your immune suppresants things continue on this positive path.

      Wow you have been achieving so much. I can imagine attending the gardens is helping you feel better too. Is it having a good impact on your mental health? We have 2 RHS gardens near me that im thinking of going to.

      Aww Teddy sounds adorable. Pets make such a difference to our overall well being. The company, companionship, routine, distraction. Excellent addition to your family.😺

      Sounds like the covid booster will be appropriate for you. I took a private anti body test 2 days ago, haven't had results yet. I have my fingers crossed there is some immunity. I had pfizer vaccine.

      I am well thank you busy. Started studying a while back and supporting charities. I have been going out on occassions to try and get back to the community. Some days are better than others. I suppressed alot of my interests when i got unwell and finding it hard to get back into them but equally finding new things i enjoy, simple walks suit me down to the ground.

      Keep safe,

      Michelle
  • Sabuz1 joined.
    Welcome Aboard!
    June 23
  • Laulau1

    Hi Clare hope you are well and don't mind me contacting you. I understand you can't get in touch with your donor until 2 years later. I've just approaching my ten month remission. Just got all clear on my latest petscan. I wondered if I could pass on a message of thanks to my donor via anthony nolan if possible. I had my transplant on 21st August 2020. All I know is my donor is female and 21 at that time. I look forward to hearing from you.

    Laulau

    June 10
    • Clare_AtAnthonyNolan
      Clare_AtAnthonyNolan
      Hi Laulau, thank you for this! Apologies that I am just getting back to you now. You can indeed pass on anonymous thanks, if the donor has agreed to correspondence. Can you email me your full name, DOB, date of transplant, transplant centre and I can ask my colleague who has the donor database to look to see if this is possible? Thanks! My email is: clare.mccrudden@anthonynolan.org. Look forward to hearing from you. Clare
  • evielou joined.
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    June 15
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    June 10
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    June 8
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    June 3
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    June 1
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    May 26