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I am now 4 years post sibling transplant and have been suffering chronic gvhd since in numerous parts of the body. It has been controlled since by steroids at various doses and mycophenolate. I have also been through ECP and retuximab treatment to no avail. I have now developed steroid induced myopathy which is causing more problems than the gvhd. My team have now said there is basically nothing else they can and I just have to manage the situation the best I can. When I reduce the steroids below 10mg a day the gvhd get worse. Any advice suggestions would be welcome.