My son Henry is heading over for bone marrow transplant soon
Hey... hope any one reading this is safe and well.
My son Henry, who is 21 months old, was diagnosed with JMML and NF1 late last year and we are heading over for his bone marrow transplant on 19th April in Bristol. There has been so much to take in lately as we have more and more phone calls about what the symptons and side effects are for all of the drugs he will be given. Also, how the isolation ward works and what we are to expect in regards to living out there and being parents to our son.
I guess we are getting our heads round all the information at the moment, and it's so overwhelming and yeah, pretty terrifying. We know we need to keep our focus and be our best so Henry gets the best care and support possible... but any tips and advice in general for being on the isolation ward would be appreciated as at the moment we don't know how it'll look.
Henry has thankfully been doing well on the run up to this treatment, and he is too young to remember all of this, but we will remember it. His strength gives us strength as he is a proper fighter through everything so far!
Thanks in advance