I am posting as an onlooker. My mum was diagnosed with AML in 2020 and successfully had a SCT a few months.
we will be 2yrs post transplant in the summer but mum is suffering terribly from chronic gvhd at the moment. Main symptoms are aggravated eyes (very watering and hard to see), dry mouth, loss of appetite and most worrying breathing issues and chest pain. She has been on and off steroids since transplant and has been having ecp but over the last few months she seems to have really deteriorated.
does anyone have any advice in this situation?
thanks in advance!!