I would be really grateful to hear from anyone who has experienced the use of jakavi. My son has terminal lung gvhd and only 18% lung function left. He's just start a last hope clinical trial. I'm beginning to hear success stories with jakavi but the NHS won't fund it anymore, it was just over covid that they would. I need to gather as much information about this drug as possible to campaign to get this funded. Its awful to hear that there could be a drug on the market that could save lukes life and we can't access it. He is only 19!