I’d be grateful if you feel up to it to if you could let us know a few facts when you get some. Nowadays it’s really not the big c word it used to be. There are lots of different factors that define it. Of course it’ll be difficult to stay calm but worrying won’t help things …knowing that helped me with my breast cancer in 2019.
have you been feeling poorly for a while?
i do wish our little group could get together sometime. I guess it’s that helplessness that comes with the diagnosis. Oh my dear Auds, sending you a big hug and kind thoughts.
i do hope you can feel safe here to download and share. You don’t need to be a hero for us, we’re here to stay, when things get tough and scary too.
sending love to you both, … I hope you’re ok Michelleanne,
Thank you both for your kind, thoughtful messages . I certainly feel as if I have two very dear friends here who will help me though the next month or two .
its cancer of the ileocaecal valve . The surgeon is hopeful that it hasn’t spread . They’ll remove the tumour and the surrounding lymph nodes . I’m not feeling great at the moment - very tired and drained. I think that it’s the anemia caused by the chronic bleeding that is causing this . However, Im trying to keep going as normally as possible although poor Graham is having to help me out .
sorry this text is so much about me.. I hope that you are both fairly well at the moment . Michelle, I really hope that your chest infection has cleared up a bit and I hope that the strong antibiotics have got rid of the stubborn cystitis, Helen.
onwards and upwards for us all. We’re a strong, wee group and will always be there for one another . ❤️❤️
thank you for the info Auds . I hope they’re satisfied with what they find and what they manage to do in the op. That’ll be good to get behind you.
Like Michelleanne says, we’re here for you now. X
I talked to my hubby about your story Auds , and I found myself saying, she’s always so kind and sensible, I think she’s going to deal with it well, relatively speaking. Of course, there’s no telling, but you are a treasure Auds and I do have faith in you.
yes, it’s really challenging having hubby have to help. We’re good at it now but I felt controlled at first which caused so much friction when you just need calm. It helped to remember he’s just trying his best… and … always keep talking, even about the little things, I call them the grit in the shoe-usually just need mentioning and it’s gone.
my cystitis is actually just my Gvhd taking hold when they try reducing my meds which is disappointing, cos I need to reduce.
hows the chest infection Michelleanne, is it lung gvhd?
ill say night night here. I’m having my hair cut tomorrow…. A highlight.
Have to laugh… my hair appointment wasn’t for highlights… I’m not like that… my life is so boring … , I meant going to the hairdressers was a highlight in my week. Only go twice a year.
in on my own tonight… I ought to clean the shower, friends coming for the weekend… but I think I’ll go for a bag of crisps and all creatures great and small… the path of least resistance as they say😘
our thoughts are with you Auds… I’ve got enough crisps for all three, of us, it’s a big bag.
I had a vaccination yesterday and felt ok today… big relief. Corona booster.
I just looked back at your 6th October message Auds,
maybe you have the surgery behind you, or hopefully soon. I’m telling myself no news is good news and that you’re simply feeling awful and that you’re hopefully looking after yourself… and letting Graham do his bit too. Hopefully your daughter and the children are coping ok too. Must be very hard.
you’re in our thoughts Auds …
sending lots of kind thoughts, biscuits, a cuppa, and love,
Auds…. I spotted your sign of life… the “like” button under Michelleanne’s post. It warmed my heart. But we don’t expect it… you’re doing well focussing on yourself… whatever You need and whenever.
we’re with you .
I’ve had two consecutive days of feeling good… with its ups and downs but it’s such a joy. I can actually operate/function, almost as if I was ‘normal’. Not really LOL
Maybe the med reduction (minuscule) is making a difference… shouldn’t even mention it… tempting fate. But who cares 😊 it feels good.
Comments
👋 lovely to hear from you ,
sorry to hear of your news , you are a very strong person take each day as it comes
always here stay strong ❤️
Oh no Auds, very sad to hear your news.
we really are here for you.
I’d be grateful if you feel up to it to if you could let us know a few facts when you get some. Nowadays it’s really not the big c word it used to be. There are lots of different factors that define it. Of course it’ll be difficult to stay calm but worrying won’t help things …knowing that helped me with my breast cancer in 2019.
have you been feeling poorly for a while?
i do wish our little group could get together sometime. I guess it’s that helplessness that comes with the diagnosis. Oh my dear Auds, sending you a big hug and kind thoughts.
i do hope you can feel safe here to download and share. You don’t need to be a hero for us, we’re here to stay, when things get tough and scary too.
sending love to you both, … I hope you’re ok Michelleanne,
helen
Thank you both for your kind, thoughtful messages . I certainly feel as if I have two very dear friends here who will help me though the next month or two .
its cancer of the ileocaecal valve . The surgeon is hopeful that it hasn’t spread . They’ll remove the tumour and the surrounding lymph nodes . I’m not feeling great at the moment - very tired and drained. I think that it’s the anemia caused by the chronic bleeding that is causing this . However, Im trying to keep going as normally as possible although poor Graham is having to help me out .
sorry this text is so much about me.. I hope that you are both fairly well at the moment . Michelle, I really hope that your chest infection has cleared up a bit and I hope that the strong antibiotics have got rid of the stubborn cystitis, Helen.
onwards and upwards for us all. We’re a strong, wee group and will always be there for one another . ❤️❤️
Morning,
we’ll be here for you all the way ❤️ you’ll come out fighting as you have done with everything you’ve gone through
now it’s time for us to keep you going
remember you’ll be in our thoughts ❤️
how’s things with you Helen hope you’re doing ok
❤️❤️
thank you for the info Auds . I hope they’re satisfied with what they find and what they manage to do in the op. That’ll be good to get behind you.
Like Michelleanne says, we’re here for you now. X
I talked to my hubby about your story Auds , and I found myself saying, she’s always so kind and sensible, I think she’s going to deal with it well, relatively speaking. Of course, there’s no telling, but you are a treasure Auds and I do have faith in you.
yes, it’s really challenging having hubby have to help. We’re good at it now but I felt controlled at first which caused so much friction when you just need calm. It helped to remember he’s just trying his best… and … always keep talking, even about the little things, I call them the grit in the shoe-usually just need mentioning and it’s gone.
my cystitis is actually just my Gvhd taking hold when they try reducing my meds which is disappointing, cos I need to reduce.
hows the chest infection Michelleanne, is it lung gvhd?
ill say night night here. I’m having my hair cut tomorrow…. A highlight.
night night, much love to you both.
Have to laugh… my hair appointment wasn’t for highlights… I’m not like that… my life is so boring … , I meant going to the hairdressers was a highlight in my week. Only go twice a year.
thinking of you both and especially you Auds.
hope you’re both having a peaceful evening.
love
helen
😂 I bet it is a high light , I can’t remember the last time I went to the hairdressers
I’m having a very peaceful night with hubby watching tv
very exciting 😂
😂
in on my own tonight… I ought to clean the shower, friends coming for the weekend… but I think I’ll go for a bag of crisps and all creatures great and small… the path of least resistance as they say😘
our thoughts are with you Auds… I’ve got enough crisps for all three, of us, it’s a big bag.
I had a vaccination yesterday and felt ok today… big relief. Corona booster.
x
I’ve been to the local town hall with our daughters to see downtown abbey which was nice
auds is my thoughts to hope all has gone well
ive had my flu & Covid injections so that’s me topped up until spring
enjoy your crisps and your tv ❤️
We’re thinking of you Auds, sending our love.
night night ,… hoping you’re ok.
hello you two,
I just looked back at your 6th October message Auds,
maybe you have the surgery behind you, or hopefully soon. I’m telling myself no news is good news and that you’re simply feeling awful and that you’re hopefully looking after yourself… and letting Graham do his bit too. Hopefully your daughter and the children are coping ok too. Must be very hard.
you’re in our thoughts Auds …
sending lots of kind thoughts, biscuits, a cuppa, and love,
helen
👋 I think the same way as you Helen
I really hope everything is ok and we know she’ll be getting a lot of love and support hope all is well with you Helen ? ❤️
hi Both of you,
Auds…. I spotted your sign of life… the “like” button under Michelleanne’s post. It warmed my heart. But we don’t expect it… you’re doing well focussing on yourself… whatever You need and whenever.
we’re with you .
I’ve had two consecutive days of feeling good… with its ups and downs but it’s such a joy. I can actually operate/function, almost as if I was ‘normal’. Not really LOL
Maybe the med reduction (minuscule) is making a difference… shouldn’t even mention it… tempting fate. But who cares 😊 it feels good.
Love to you both
Helen
👋every little improvement is a good sign
I agree with Helen always here whenever you’re ready ❤️
Been Thinking of our little group.
let’s hope we get through the week ok. And if it isn’t, that we can take things gently.
love
helen