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Hi everyone,
Following information from UK Government and the publication of NICE guidelines, we have updated our advice on the coronavirus for people who have received or are waiting to receive a stem cell transplant to treat their blood cancer or blood disorder. Read our coronavirus guidance here: www.anthonynolan.org/coronavirus

Colin

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Colin
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  • My liver still hasn't settled down. It's now only reading about 73 instead of 45. At times it's been 10x the recommended level. I am told it is GVHD and not to worry. I hope your liver problem is something similar
  • I'm pretty good. Still have some GVHD but my specialist says I have the "Goldilocks" amount. My liver is slightly inflamed but most of the symptoms are negligible. It's definitely a slower recovery this time. I never went on this network in 2017 as …
  • Hi Jane. I've done a 2nd transplant for AML and I'm still here. Diagnosed in 2012. Transplant from an unrelated donor. Perfect recovery, or so I thought, until I relapsed after 4.5 years. My specialist suggested I go for a 2nd transplant from the sa…
  • I lost a load of weight about a year after my transplant. My consultant said it was GVHD and it would sort itself out in time and not to worry. He also said keep eating. Good luck.
    in weight loss Comment by Colin February 28
  • Thanks Steve. Well done for looking after the forum and giving something back. I never posted in 2017 because I felt my story when I replapsed was too negative and I didn't want to scare people. I did get a decent amount of GVHD first time around ( …
  • Hi Jane. I nearly 3 years post a 2nd transplant for AML. Hope you are still progressing well. Colin