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FalloutOnTour

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FalloutOnTour
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  • Hi Buffy Sorry for being late to the conversation, I am one of the other Online Community Champions like Steve and Michelle. I'm sorry to hear about your troubles in regards to your brother. As everyone has already said, your brothers medic…
  • Hi Laulau Even though I am a couple years out of transplant I still treated the shielding periods like having low neutrophils. I always stay on the side of caution as well, I haven’t been to a busy place like a shop since COVID started and alw…
  • Hi LauLau It’s good to hear you are doing so well!! I can’t give much advice in the way of breathlessness on how to counteract it, but what I found is with time, your stamina will gradually increase and be able to do a little more each day! …
  • Hi Laulau Sorry to hear about your troubles. I also had immunosuppressants until around 6 months after my transplant and like you, experience dips in energy and interrupted sleep. I found what worked well was just taking it slow for a while…
  • Hi Raka Sorry to hear that. I have had 3 battles with cancer starting from 2013 until my transplant in 2017. I am currently 18 at the moment so I spent a lot of my schooling years in hospital. I haven't had multiple transplants but I do kno…
  • Hi Steve Thanks!! I am starting to have offer holder days so I will get more information about the courses before I make a decision. In regards to side effects, like you, Everyone I have talked to has just had a sore arm as well and nothing…
  • Hi Steve!! Congrats on 500 posts/comments!!! Its been great getting to know you for the short period of time I have been volunteering! Due to being an NHS volunteer, I got my covid vaccine 3 weeks ago and I can report that I didn't get any sid…
  • Hi Michelle Thats great to hear you have everything sorted now. I think the cataracts are a side affect of just having loads to treatment. They were actually picked up before my transplant and were monitored throughout the whole process as wel…
  • Hi Michelle, Im doing well, hope you are too. I did, at times, have dry and gritty eyes but nothing major to shout about. However, due to having loads of chemo and treatments, I developed cataracts which are cloudy patches on the lens of yo…
  • Hi Laulau, I didn’t have this problem during transplant but I did during treatment before my first relapse. I had new nails growing under my old ones. My old nails used to slowly move away from the nail bed towards the tip before they eventual…
  • Hi Laulau, I found having a really sore mouth really evident during my transplant as well. I found that using the gel and mouth wash consistently really helped keeping my mouse clear of any ulcers. I was adamant on not having a feeding tube s…
  • Hi Laulau, Congrats on 100 days!!! I think doing a family zoom is a great idea on Christmas and might steal it :D. As everyone has said, day 100 is a significant day in everyone's transplant journey but your immune system is still not full…
  • Hi Steve and Michelle, How are you? I'm glad to hear I'm not the only one having a quiet Christmas this year. As you both said, its definitely the safest way to spend Christmas this year. Its been good to hear how yourselves have gone about…
  • Hi everyone, sorry for replying late. I've been really busy with other things and kept on meaning to watch the video. I 100% agree with the vicious cycle of breathlessness. My second relapse happened a month after finishing my 2 year low lose che…
  • Hi Michelle It was something that always cheered me up talking to friends and teachers as it was something different from the same boring day. Its surprising that you did not get really any opportunities to meet people in a similar situation t…
  • Hi Steve Hope you are well, I was 11 when I was first diagnosed, and had my transplant around the age of 15. So my story stretches over a couple years! It’s interesting to hear everyone’s approach to how they cope with life during treatment…
  • Hi Michelle How are you? Thank you for the positive words!!! Believe it or not, there was not really much difference from communicating with my friends in isolation and communicating with my friends during lockdown. For me, how I kept up…
  • Hi Michelle!! I didn't really have problems with staying warm during treatment or post-treatment. I am also on vitamin D supplements which helps out. I don't know about you, but I burn really easily during treatment so I was always lathered wi…
  • Hi Michelle Hope you are doing well. Being a teenager during lockdown, I started to progressively to go to bed later and get up later since I had no school or commitments. I was starting to not like this because I would wake up, get ready and …
    in Sleep Comment by FalloutOnTour July 2020
  • Hi Michelle (again :)) ) Thank you for the kind words and will start a discussion about having a transplant as a young person. Hope you have a great day, Cameron
  • Hi Steve!! What a coincidence!! Its good to here you are doing good. When I was diagnosed at such a young age, my focuses on what was important to me would have looked different to you, I will certainly start a discussion on what transplant an…
  • Hi Michelle! Its great to here you are doing well. After Transplant I found my energy levels so depleted to the extend I could only sit in a chair for half an hour or so at a time. This was the case until I could get out of isolation and start…