Following information from UK Government and the publication of NICE guidelines, we have updated our advice on the coronavirus for people who have received or are waiting to receive a stem cell transplant to treat their blood cancer or blood disorder. Read our coronavirus guidance here: www.anthonynolan.org/coronavirus
Let me introduce myself. Im Cameron, the other new Online Community Champion.
I was diagnosed in 2013 with Large Cell Anaplastic Non-Hodgkins Lymphoma or Lymphoma for short. I had a really long journey before I even got to transplant so I'll try make it short. Initially after being diagnosed I was given 6 rounds of chemo which put me into remission and I was sent on my way with regular check ups. Then, 9 months later, I relapsed and was given 2 years worth of low dose chemo called Vinblastine. However, this only kept the lymphoma at bay whilst I was on treatment and one month after finishing I relapsed again. This is where my transplant story begins.
I was given 5 rounds of antibody treatment to get rid of any remaining lymphoma and had a non-related donor transplant in January 2017. The only thing that went smoothly was the hour or so I recieved my donor cells. After that it was all down hill. I had GVHD which did not go away with steroids so I had this treatment called ECP. This is a process where a machine took my blood and zapped the white blood cells with UV light. I had this a couple times a week for 2/3 months. I also had every virus under the sun from norovirus to astrovirus and more! One of them even put me on gastric rest for a week.
With everything included, I spent around 3 months in hospital and havent been admitted since. I have now been in remission for 3 and a half years and have met my donor which was amazing! I also held a drive at the school with Anthon Nolan and Scottish Fire and Resuce Service where I got fellow class mates to sign up to become a donor. The day was a success with 140 people signing up to become a donor. I have just left school and am taking a gap year before starting University. I am hoping to study Medicine.
Thats is my story and hopefully it was insightful. How is everyone doing?