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Auds21

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Auds21
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  • Hi Everyone I'm sorry that I haven’t been around for a wee while but glad to be chatting now Helen, I was really pleased to hear that you managed to get back on the ecp and hope that it is helping though I know that it is early days . You all have to develop so much patience along with everything else that is part of your…
  • Hi Michelle Lovely words that I think we all have to remember especially in the even more difficult times . you have been such a strength to all of us in this group . Please remember that we are all here for you too . I’ve seen via my daughter how mentally stretching this illness is for you all and also for the relatives…
  • Hi everyone. It makes me very sad to read how you are all suffering in your own way and for different reasons. Dave and Helen , I can only imagine just how difficult and downheartening your illness is but Dave you are right- your medics are doing everything possible to help you and when they lose a patient it is very hard…
  • Hello Everyone. I hope that this week has been a little better for you all. Helen, I hope that you’ve been keeping positive and recovering from being in hospital. My daughter had just had a week in hospital . It seems a repeated pattern of bad cough, high temp etc. Her lungs have been damaged with all the treatment and…
  • So glad that you are back home , Helen. you’re right, we’re all in this together and all here for each other . i hope you have a good, peaceful sleep in your own bed tonight. Xx
  • Hi Helen i am so sorry to hear what has been happening with you. It sounds so similar to my daughter. She was also admitted with the RSV virus . As you say, nothing much for the average person with a good immune system but so debilitating and frightening for those who have a weakened or no immune system. I can understand…
  • Hi beaglegirL lm so sorry that that you are struggling so much. I know that there’s nothing that any of us can do to take away your pain but I’m glad that you are reaching out as we all want to help you in any small way. we’re here to listen and try to be with you through this painful journey. People kept telling me that I…
  • Oh Michelle, I’m so sorry that you’re having to go through this . I know that when you’re in the midst of a Covid attack or any other illness , it seems relentless but it will pass. Please remember how strong you are and how you have got through so much and always have time for others . We’re all here for you . Sending…
  • Hi Everyone Helen and Dave , it’s so good to read that you are both being able to support each other with your symptoms and you both seem in a slightly better place. I just want you to know that I constantly think about everyone in this wee group . I think that our chats really help everyone . Beaglegirl, I know that you…
  • Hello everyone . I hope that today has been one of your better days although I know how much you are all struggling at the moment. I just thought that I’d give you a wee update on my daughter . She was told on Sunday that she had tested positive for Covid . Of course that put me into panic mode . Then yesterday she was…
  • Helen , you were not being insensitive and just saying what was on your mind. You have so much going on that no wonder that you have lots of different concepts to explore and ponder over . i do have intense grief. I loved my boy so much and every day is hard. Added to this, the worry of my daughter’s health can be quite…
  • Hi Helen i feel such a bond with you all and knowing how my daughter suffered and still has the illness hanging over her, if i can help any of you just wee bit, then i feel privileged. unfortunately my daughter is back in hospital. She has another virally cough and cold and has spiked a temperature. I’m wondering if any of…
  • Hello everyone . I’m so sad that you are all having such a struggle just now . This time of year doesn’t help as it’s difficult to get any fresh air . No-one would want to sit outside in the wind, rain and cold! Dave, I so wish that you had a few friends that could pop in for a chat. I know that when you are so low , that…
  • Hello Everyone im thinking about you all and know how challenging each day is for you all, sometimes more so physically and other times emotionally and sometimes both . This is such a lovely wee group and its wonderful how we all try to support and encourage everyone else . Beaglegirl, you’re going through the most…
  • Hi Beagle girl its such early days and your emotions are all over the place . There’s not a right or wrong way of how to act and what to think. please give yourself time and don’t judge yourself or others . I think you probably can feel that this group of friends care about you and are here for you. Chat to us when you…
  • Hi Beaglegirl Im so so sorry for your heartache and despair. I feel so much compassion and empathy as I am still grieving terribly for the loss of my son. what I would say is the way you are feeling is normal- it’s grief at its worst. The despair and panic at the thought of never seeing your loved one again seems…
  • Hi Everyone . You are all going through extremely challenging times in different ways . How I wish there was a magic cure but we all know that it’s trial and error and you must all try to stay positive . You all have great medical teams even though I know that at times you question their approach. It’s easy enough for me…
  • Thinking about everyone . What you have all gone through and are going through would be non comprehensible to some people. i just want you all to know that I’m thinking about you every step of your journey. Hopefully, when winter blows away and spring arrives, spirits will lift and all your positive natures will be fired…
  • I really hope that the resurock helps you , Dave . I think that it’s great that you are trying everything possible and not giving up. Either the resurock or something else will eventually help. Good luck and let us know how it goes . I hope that you can arrange transport and get it as quickly as possible . X
  • Hi Michelle, Helen and Dave i just want you to know that I think about you every day and very much hope that you can get some relief from the horrible symptoms that you are all having to put up with. Michelle, I think of you all as my friends and I know that the others feel the same so you have lots of people who care here…
  • Hi Michelle, Helen and Dave im sorry that I haven’t been around for a week or two. I always think about you and know that life is not easy for any of you. Michelle , I’m so sorry that you are feeling so low at the moment. This is so understandable as having to evolve life round hospital appointments and not feeling great…
  • Hi Beaglegirl i am so sorry to hear about Martin. I can feel the pain that you are going through as I have and am still going through the awful pain of losing someone . my son was knocked down and killed by a speeding driver . That’s when our lives came crashing down. We had 35 wonderful years with our boy and then just…
  • Ps - thanks for cuppa and cookies. I’m having them now. Hope Helen can join us .
  • Hi Michelle im sorry to hear about your sickness. My daughter had a bout of that and it came out of nowhere . Her consultant said that with her immune system being so low that anything lurking about is so much worse for you guys . Hope you feel better soon. my daughter is doing well . There doesn’t seem to be any signs of…
  • Hi Michelle Im glad that your team are being thorough and trying to get to the bottom of what’s going on. They’ll keep at it until they find out and sort your immune system out. I really wish that you could all get a break. Helen and Dave, I’m thinking about you both as always . Night night all my friends . Xx
  • Hi Beaglegirl. Im so sorry that your husband is having such a dreadful time. my daughter also had a feeding tube when she was extremely ill and although it looks scary and unpleasant , it will help your husband get the nutrients that he needs. Everyone is so different in how they respond to the various treatments . I think…
  • Hi Michelle i don’t drink any more either so looking forward to that coffee with Helen and you. I hope that the clinic has some helpful insight into your immune system . Thjnking about you, Helen and Dave . ❤️
  • Beaglegirl, I’m so sorry for everything that you are going through just now . it’s difficult to know what to say apart from that from my experience with my daughter , things can change very quickly and after hearing bad news one day , I was sometimes told something more positive the next. Your husband’s consultants won’t…
  • Hi Helen and Michelle can I please gate crash the chocolate and biscuits party? 😂 sounds like fun! Ive been thinking about everyone during the holiday period. We all need a bit of extra strength during this time but having each other certainly helps. Dave , I do hope that you got some respite over Christmas and New Year.…