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Auds21
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So glad to hear that you had a lovely time with your little granddaughter, Michelle. Little ones are a wonderful distraction! My daughter went to a haematology support group organised by Maggies today. Although everyone had different forms of blood cancer , she said it was good to speak to others and she was able to chat…
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hi Everyone I hope that you’ve all enjoyed some sunshine ( even through glass ) over the last day or two. Helen, it’s lovely to “ hear “ an upbeat note in your voice. I’m so happy that the dermatology visit went well and they are starting you on light therapy treatment as well as physio. You just needed a plan that sounds…
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It’s a beautiful day here - cold but bright and sunny. I hope that the sun is shining on all my Anthony Nolan friends . Always thinking about you. Xx
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Hello everyone it’s good to hear that despite what you are all going through, you keep going and manage your symptoms as well as possible . it’s more difficult in the winter when you can’t sit outside and breathe in the fresh air. I’m thinking of buying a patio heater so that I can wrap a blanket round me and sit outside…
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Hello everyone and sorry that I haven’t been about. We went off to a London for a few days but to be honest I found it a struggle . I was diagnosed with ptsd which I’m not surprised about. anyway, enough about me . Michelle , I am so pleased that you have been given positive news and you are definitely a true warrior and…
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Hello everyone and I’m so sorry that I haven’t been around for a while . Firstly, I want you all to know that I think you are all so amazing, getting up every morning and ploughing through the day. You all have such huge obstacles to overcome but your inner strength and resilience will help you to eventually win through.…
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Michelle, I’m so sorry that you’re going through this . No wonder that your mood is low. Please remember that we’re all here for you. You have been such a tower of strength to myself and lots of others and now you deserve some tlc until they get to the bottom of things and start a plan of treatment. It’s such a difficult…
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Hi Michelle, you too are having a difficult time and I really hope that the antibiotics kick in and help to clear your lungs. I know that lungs can take a while to start to improve as my daughter went through a particularly bad spell with them. She still has a persistent cough but her consultant doesn’t seem too concerned.…
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Helen, you are having such a rough time and I want you to know that I am thinking about you a lot. I know that you are in a lot of pain and it seems to be taking forever for them to get to the bottom of things - but they will and then they will start you on a treatment. You do so wonderfully well to keep going and the…
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Hi everyone and thank you so much Dave for giving me such a detailed and helpful understanding of the biopsies that my daughter is having every 3 months at the moment. I suppose it’s only natural to be a bit apprehensive when waiting for the results It makes me so sad, Helen and Dave that you are having so much trouble…
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Hi Michelle i do think there’s similarities between my daughters symptoms and yours . I just worry all the time but try to appear relaxed in front of her . She doesn’t want a fussing mum, just to be treated normally. She had another biopsy at the beginning of the week so always a bit tense while we wait for results. How…
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Hello everyone Gosh you all have so many challenges to face everyday and yet you all sound so upbeat and always here to support the others. I know that although you all come across as so upbeat that life is not easy for any of you. beaglegirl, it is so good to hear that your husband is making such good progress. I would…
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Michelle, I’m thinking about you and really hope that your chest starts to improve soon. You do amazingly well to keep positive and cheerful when these setbacks come along. my daughter has a cold at the moment and although she doesn’t complain , I worry that it goes into her chest. look after yourself and always thinking…
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Hi Everyone Its so good to hear from you all and thank you for the kind comments about my daughter . Michelle - I had to smile when I read your text as my daughter says exactly the same - “ I just do what I’m told “ and I know that you all have faith in your doctors to do the best for you. I do hope that you are now…
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Thinking about you Michelle and hopE that they sort out your chest infections soon. My daughter had so many chest infections while in hospital and when she got home . I really didn’t know how the medics were going to help clear it up, but it has eventually got much better . I think this illness requires you to have so much…
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Hello everyone just checking in to see how everyone is doing. Congratulations, Michelle, on 3 years since your bmt . I know that the journey hasn’t been easy and life still has its ups and downs but you are doing so well and are such a support to all of us . Helen and Dave - I think that you are both probably still…
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Hi everyone i think about you all a lot. Helen, I really hope that your skin begins to improve soon. It requires so much patience and strength and I know that these are qualities which you have in abundance. Dave, I am thinking about you and hope that it won’t be long until you turn the corner and feel as if you are making…
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Hi Beaglegirl. I am so sorry that your husband is suffering and that you are going through such a worrying time. I totally get how powerless you are feeling but being by your husband’s side and supporting him the way that you are doing, will really be helping him emotionally. We’re all here for you and please keep chatting…
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Beagle girl- try to stay strong. Your husband has and is going through so much. Speak to his consultant and hopefully he can reassure you. He has such a severe illness with all sorts of side effects to the treatment, illness and medication. I really hope that the doctor can put your mind at rest.
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Hello everyone and sorry that I haven’t been on here for a while. I’m being kept busy with the grandkids and we’ve had a very difficult week as the driver of the car which killed my son was charged and it was all over the media again Anyway, I have been thinking about you all and Helen, I’m so sorry that you are going…
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Hello everyone . Helen, I’m so pleased that you’ve had a little bit of respite from your symptoms although I know that it’s a constant battle . Michelle , I am just wondering how long you have been on the immune suppressants . I’m not sure how long ago it was that you had your second SCT . Dave I’m so sorry that you are…
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Hi Helen . Sending lots of hugs and positive thoughts that things get a bit better for you soon. It’s such a hard illness with so many ups and downs . We’re all here for you and I want you to know that you are in my thoughts .xx
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Hi Michelle and a very Happy 60th Birthday to you. I hope that you’ve had the best day possible . This illness is so cruel and puts you all through so much. You are bound to have lows and I think that you do remarkably well to always pick yourselves up and soldier on. Not only that but the help and support that you give to…
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Hello everyone. Beaglegirl, I am so sorry that you are going through so much worry with your husband. I can imagine how you are feeling as I have gone through so much with my daughter. You will keep worrying until he takes a step forward but please keep listening to the three wonderful people who are sharing their…
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Hello Beaglegirl i am sorry that I have been out of action while you have been going through this horrific time . I am so very happy to hear that it is not a relapse . I was going to say to you that when my daughter was extremely ill after her second transplant we were told to prepare for the worst. My son had just been…
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Hi Dave and thank you for your kind words. I so wish that I could wave a magic wand and take away all your symptoms and health problems. Also everyone else’s as well. Helen and you are having a particularly rough time. I really hope that tomorrow’s infusion will help you, if not immediately then soon. Im also thinking…
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Hello Everyone i think about you all a lot and know that every day is a challenge. I also know that you never give up and are so kind and caring to each other ( including me ) in this group. Helen and Dave, I really hope that you are both having some improvement of your symptoms and Michelle, I’m hoping that you are having…
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Hi Helen. I’m really sorry that you are still struggling. It seems to be so much trial and error until they find what works for you. Thinking about everyone and their daily struggles. Patience seems to be the key word, even for the loved ones of patients, as we so much want to see you all make good progress . Always…
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Hi Everyone Helen and Michelle - it’s lovely to “feel” the positivity in your posts despite all the challenges that you face on a daily bases . I think this cruel illness makes you all mentally stronger and Helen, it’s wonderful that despite what you are going through , you can encourage and be compassionate towards your…
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Hello everyone . It’s lovely to read all of your texts and it’s so good that you all feel comfortable enough with this group that you can share whatever you would like to say. I can see ( although probably don’t fully understand ) just how much my daughter has suffered emotionally as well as physically. All your lives have…