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Auds21
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Hello Helen I just want to say how pleased I am to hear that the gvhd has began to improve . I know you went through a low time over the Christmas period and so this is very good news . Adelaide, I would second what Tony has just said. Your daughter is in very early days of recovery and I think it is a hard road for…
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Hello Adelaie i am so sorry that your daughter is so ill and also that you are going through so much worry. I can empathise so much with you as my daughter had a second stem cell transplant at the end of July. She was admitted, very ill with pneumonia and has had a very rough ride. There were times when we really thought…
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Thanks so much for sending this link, Helen. I’ll have a look and also forward to my daughter. It’s good to hear that your fatigue has improved . How has your gvhd been over the past week or two. I do hope that there’s an improvement. Michelle, you never pester. You are such a great support and friend to us all and if we…
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Hello everyone I’m sorry that I have been slow to text over the last week or two. I haven’t been very well myself - just a rumbling chronic condition which has flared up a bit. Anyway, firstly , I hope that you are all keeping as well as possible and that the gvhd that Dave and Helen have been suffering with has eased off…
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Hello everyone. Thank you so much for all your detailed replies. They are really helpful and reassuring. ill keep you updated on my daughter’s progress and hope to hear that you all have some better days soon. You are all such a support to myself and each other. Thank you.
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Hello Michelle, Helen and Dave i am so sorry that you are all having such a rough, challenging time. My heart really goes out to you all as I can see first hand what my daughter has to go through on a daily basis . I don’t think anyone who is not either fighting this wretched illness or caring for someone going through it…
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Thank you so much, Michelle, for your kind message. Im so sorry that you have had a virus and it has been rumbling on. Are you getting over it now - I really hope so. When I am with my daughter and see what she is going through in a daily basis with such strength and courage , I have nothing but admiration for yourself and…
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Best Wishes from Audrey
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Hi Everyone I hope that you all had the best Christmas possible and I wish you all a happy and healthy New Year. Helen and Dave, I have been thinking about you and so hope that the gvhd eases off a bit soon and that you both take more forward steps in the next few weeks. My daughter managed to spend Christmas with her…
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Hi Michelle, Helen and Dave, Thank you all for your kind, supportive messages over the past months . I feel as if I have gained such good friends on this site. Helen, I’m so sorry that you are struggling just now. As an onlooker and also very involved with my daughter, I see that this illness is like a roller coaster. One…
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Hi Michelle and Helen. Firstly, Helen , I want to give you a big virtual hug and I can’t say how sorry I am that you are having such a rough time. Although I am fortunate enough not to suffer from this cruel illness, I go though it daily with my daughter and know just how challenging every day is. I also can feel both you…
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Hi Dave, Michelle and Helen, Thank you Dave for sharing some of your journey. It really helps to know what others have gone through and I’m so glad that things are slowly getting better for you. Also for explaining and reminding us just how much you’ve all been through and how it requires so much patience and how symptoms…
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Hi Michelle My daughter has picked up a bit since Tuesday, thanks. The enzyme part of her liver is causing problems . They think that it’s either the gvhd or one of the meds that she’s on. I think it’s the anti fungal one so they are going to change it to see if that helps. She still had no appetite and they are keeping an…
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Thanks so much, Michelle. She’s so thin and unwell. She’s also so uncomplaining like everyone else here. Yes I have family to talk to. I’m also helping out with the wee boys so that is a nice distraction. I’m a half way house. She needs to get back to her family but she’s not strong enough yet. I hope that you are feeling…
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Thanks Michelle and Helen. I’m beside myself with worry this evening but your words of encouragement and sharing your experiences real help.
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Thank you so much for your kind words, Helen and Michelle. Today has been a very tough day for my daughter. Her stomach pains have not relented and everything ( not much ) is just passing through her. How I hope that it abates a bit tonight. It is very hard for loved ones having to watch while their daughter, wife ,…
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Hi everyone Firstly, Beaglegirl, I hope that your husband is making a little progress . I have not gone through any of this but like you, have watched my daughter struggle through a second transplant and various infections . one of the things that has kept me going is that Michelle said that the medical teams are fantastic…
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Hi everyone . All your “food stories “ have made me smile in a nice way. They’ve reassured me that how my daughter is feeling regarding food is very normal after a transplant, or in her case ( and Michelle’s ) two. She’s eating a very small portion of what we are having for our evening meal and nibbling a little throughout…
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Hi everyone . Thank for your kind messages and I hope that your daughter, Babs, is doing well in her recovery . it certainly is a roller coaster journey! My daughter is home with me until she is strong enough to cope with her wee boys . She’s delighted to be home but is very weak and underweight. I think that she is…
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Thank you so much, Helen and Michelle for your good wishes to my daughter and all the support that you’ve given us. My daughter came back to me to convalesce this evening. She is so weak, frail and thin but I’m hoping being here and being able to see the boys will help in her recovery. Helen, I’m so sorry that you are…
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Hi Beaglegirl I’m so sorry that your husband is having to have a second transplant. I can just imagine how worried you are but try to focus on the fact that they wouldn’t be doing a second transplant unless they felt that your husband will benefit from it. I think everyone is different and my daughter has had a very rough…
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Hello Michelle and Helen i just want to give you a happy update about my daughter . They started her on steroids a couple of days ago and the improvement has been wonderful. She had the sigmoidoscopy yesterday. They think that she has colitis and the steroids are helping as well as if she has some gvhd they will help that…
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Hello Helen and Michelle Thank you for your kind, helpful messages. Another rough day for my daughter. She has been very nauseous for a couple of days, extremely tired and generally unwell. The doctors are taking her off a couple of the meds that might be causing her feeling so nauseous. Helen, it sounds as if she could be…
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Thank you, Michelle. im sorry that I seem to be posting a lot but it’s such a touch time that my daughter is having. Her mood is very low. She’s missing her little boys so much. She’s hardly seen them in the last 6 months . I don’t know how I can help her to feel mentally a bit stronger. She’s waiting for a sigmoidoscopy.…
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Thank you , Michelle. Ill keep you posted re my daughter and hope that your health keeps improving along with Helen’s and everyone else who is struggling or has a loved one who is battling this cruel illness.
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And I am with you both too, as well as everyone else struggling with this cruel illness. This site and all the kind, supportive members have been my lifeline on very dark days. the medics think that my daughter now has colitis. More tests tomorrow.! I hope that you have some better days soon, Helen and that you, Michelle,…
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Dear Michelle and Helen, I think you are both so strong and positive and you both don’t know how much your supportive texts are helping me during this difficult time . Thank you both so much for taking the time to reassure me when I know that you are both struggling but also that you have such positive and determined…
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Hello and firstly, Babs, I am so pleased to hear that your daughter seems to have turned a corner and is doing much better . That’s wonderful news! Helen, it sounds as if you have had and are still having a rough journey. Good news about your mouth being a bit better this morning and I really hope that this continues . The…
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Thank you, Helen and Michelle for your support and kind texts . Today my daughter has been very poorly with a very high temperature. She had another ct scan and her bowel is infected . The catheter was removed and bladder seems a bit better . Now it’s the bowel. she’s so uncomplaining and a fighter . Hearing how people…
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Thank you, Michelle. My daughter now has a temperature and feeling really nauseous and poorly. When one thing seems to be improving slightly , something else happens. I’m so worried and hate seeing her like this. i hope that you are still doing well. Best Wishes Audrey