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Auds21
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ps - I’m not sure if she’s on steroids. I don’t think so but will ask her tomorrow. Best Wishes Audrey
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Thank you so much for your reply Michelle. our lives are a nightmare just now. My younger son was knocked down and killed at the weekend. I had to tell my daughter as she struggles with her illness.
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Hi Today we have been told that the chest infection that my daughter had before her transplant ( 6 days ago) is worse. They are going to give her medication to stop it spreading and hope that by day 17 post transplant when her immune system starts to work that it will destroy the infection. They believe that the sore mouth…
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Thank you so much for your detailed and positive replies, Steve and Michelle. i know that everyone is different but you have reassured me that what my daughter is going through might be expected . She is just 5 days post transplant. She is very sleepy but today she did not feel quite so nauseous. I will keep you posted and…
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Hi Rachel. Thanks for your detailed reply. I will contact the patient services team. Best Wishes
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Thank you so much for your kind supportive comment, Steve, Rachel and Michelle. my daughter was doing so well at 100 days post transplant. Then she began to deteriorate . This was after her first covid jab and the specialists think that this could have caused the rejection of the transplant. my younger daughter is a half…
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thank you for this post. My daughter’s graft has failed and we are devastated. She is facing a second transplant and your text has given us hope. It’s such a difficult time and every positive post helps so much .