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HelenSpeedwell
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😂 in on my own tonight… I ought to clean the shower, friends coming for the weekend… but I think I’ll go for a bag of crisps and all creatures great and small… the path of least resistance as they say😘 our thoughts are with you Auds… I’ve got enough crisps for all three, of us, it’s a big bag. I had a vaccination yesterday…
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Have to laugh… my hair appointment wasn’t for highlights… I’m not like that… my life is so boring … , I meant going to the hairdressers was a highlight in my week. Only go twice a year. thinking of you both and especially you Auds. hope you’re both having a peaceful evening. love helen
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thank you for the info Auds . I hope they’re satisfied with what they find and what they manage to do in the op. That’ll be good to get behind you. Like Michelleanne says, we’re here for you now. X I talked to my hubby about your story Auds , and I found myself saying, she’s always so kind and sensible, I think she’s going…
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Oh no Auds, very sad to hear your news. we really are here for you. I’d be grateful if you feel up to it to if you could let us know a few facts when you get some. Nowadays it’s really not the big c word it used to be. There are lots of different factors that define it. Of course it’ll be difficult to stay calm but…
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Lovely to hear from you both, I can only shake my head in disbelief at the sentence. I can’t imagine what you’re all going through Auds . A good friend of mine at college lost her Dad to a drunk driver at a young age … I’m deeply shocked that it can be treated so lightly. Begs belief. I really had to read it twice to grasp…
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Hello you two, it’s heart warming to hear from you both and to read your kind words. Auds , just reading your news is daunting… and it seems like you’ve been the one holding things together. Sending you our love , I don’t know what else we can send you. Words fall short. There’s a magic spell attached here for some peace…
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Hope your chest is better. x
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Off to England, new Forest next week. Black Forest to new Forest 🤭 I hope you’re both keeping ok. i’m going to do all I can to stay well this time on holiday. Mask, gloves…. I’ll look ridiculous but hopefully will avoid the clinic visits abroad. love to you both, helen ps. I wrote this ages ago but it didn’t send. Probably…
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I’ve been thinking of you Auds, and the court case date has come and gone… 8th - 12th July, I do hope you’ve been able to find strength to get through it. It must be like triggering it all over again. Terrible. You are a hero , even if you don’t feel like it. i hope the grandchildren have been able to distract you, and…
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You poor thing. my Kristin Neff website helped me a lot. It has a few free good resources. Also the learning platform ‘future learn’ helped me get into mindfulness, free online courses created by top universities. About all sorts of topics, but mindfulness and self compassion was the thing I needed then. You can pay if you…
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Best of luck. I hope they can make a positive difference for you. love helen ps. I had negative experience with therapy although didn’t know at the time. There’s a good woman’s hour on radio 4 about therapy. I found it an eye-opener.
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I’m writing on the sofa after a deep lunchtime sleep, but things are better since they re-increased my immunosuppressant again. back to square one but feel ing better for it. my plan is to try again in a few weeks, this time with my gps help. it was obviously my gvhd making me struggle and leading to infection. 🙃 I think…
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just tried to upload a photo of my Ecosystem… LOL… aka garden. I’m in love with it but it’s very overgrown. il be thinking of you and family on 8th. sending strength and love Helen ps. Started more antibiotics today. I have a referral to a urologist to find out what the problem is. … I forgot to hit send and just found…
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Hello Michelleanne, something I found really helpful for the antibiotics is -poor translation- intestinal flora- last year I was on antibiotics that really grounded me, emotionally floored me… but after that horrible experience I always take “darm flora” (lactobacilli/ bifidobacteria/ streptococcus thermophilus……
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My dr told me to take my iron before I go to sleep on an empty stomach. I take a tiny bit of vitamin c in water with it. cant nibble on things in the evenings though. Shame. the iron has made a big difference to me. now I’m just always indoors cos it’s so hot. Can’t cope in the heat. love to you both, helen
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Lovely to hear from you both and to hear that about your daughter! Wonderful… it’s making me smile now writing… great news, inspiring. sorry to hear about your chest Michelleanne, that’s been going on for ages. I was just reading the side effects of Myfortic, and chest is one of them. I hope they keep onto it and try to…
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Hello again you two, I was just listening to this very special podcast, and had to think of you Audrey. Link at the bottom Such a strong woman. love to you both Helen https://www.bbc.co.uk/sounds/play/b01hdqmd?partner=uk.co.bbc&origin=share-mobile
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Thank you all for your support. this site has been very helpful for me. best helen:)
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I’m so grateful for every day that your daughter gets with her children Audrey. Every moment. Your daughter is relatively young and research is going a pace at the moment for gvhd. I live near a city where one of our doctors won a very special prize for his research into the field, a study which I turned down. and maybe…
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good evening, off to bed, but just saw your messages. Nice to hear from you. touch wood you were able to stay away from the chickenpox Michelleanne, a bit of a worry. Audrey, I hope the colonoscopy wasn’t as bad as you thought. I got a small anaesthetic before the big anaesthetic and slept like a log through it all. You’re…
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it’s touching that you’re in awe of us Audrey , thank you… it doesn’t feel like awe inspiring , just trying to get through. That’s wonderful news about your daughter Audrey. I hope she can enjoy a bit of fun with the boys. It has brought me a smile and lifted my spirits. Thank you for sharing that with us. I’m so very…
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The mention is right at the end… you could skip most of it. night night xx
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Just been listening to a stand up comedian on radio 4… he mentioned Anthony Nolan :) that was a lovely moment. here a link , it’s on Sounds app if you have it. It’s strong language sort of thing, but he made me laugh. enjoy 😘
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hello you two, I shouldn’t be on my mobile… I’m trying to use it less. But I just came home, first time out for ages due to my nasty cold. And I had to say Michelleanne, you were right… the longer warmer days bring a blessing. I just popped into our village and ‘bumped in to people “ as they say. It really did me the world…
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Hello you two, Ive been a bit poorly, only a normal cold but it has grounded me for a few days…you know how it is… reading your posts … you understand. Of course worried it could go to my lungs etc, I have to be patient with myself, I can’t change it. Audrey, we’re grateful that you can feel our trust and share with us.…
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Sending love Michelleanne… spring’s coming
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That’s so funny… I was just reading your posts.. hubby walks in and , by way of explanation I say, it’s my little group… the one Dave was in… and now I’ve read your posts and you both mention him. I think , if he is with us, he’s feeling quite pleased that he’s still very present here… that’s lovely., thanks Dave😘 I do…