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HelenSpeedwell
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good evening, off to bed, but just saw your messages. Nice to hear from you. touch wood you were able to stay away from the chickenpox Michelleanne, a bit of a worry. Audrey, I hope the colonoscopy wasn’t as bad as you thought. I got a small anaesthetic before the big anaesthetic and slept like a log through it all. You’re…
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it’s touching that you’re in awe of us Audrey , thank you… it doesn’t feel like awe inspiring , just trying to get through. That’s wonderful news about your daughter Audrey. I hope she can enjoy a bit of fun with the boys. It has brought me a smile and lifted my spirits. Thank you for sharing that with us. I’m so very…
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The mention is right at the end… you could skip most of it. night night xx
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Just been listening to a stand up comedian on radio 4… he mentioned Anthony Nolan :) that was a lovely moment. here a link , it’s on Sounds app if you have it. It’s strong language sort of thing, but he made me laugh. enjoy 😘
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hello you two, I shouldn’t be on my mobile… I’m trying to use it less. But I just came home, first time out for ages due to my nasty cold. And I had to say Michelleanne, you were right… the longer warmer days bring a blessing. I just popped into our village and ‘bumped in to people “ as they say. It really did me the world…
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Hello you two, Ive been a bit poorly, only a normal cold but it has grounded me for a few days…you know how it is… reading your posts … you understand. Of course worried it could go to my lungs etc, I have to be patient with myself, I can’t change it. Audrey, we’re grateful that you can feel our trust and share with us.…
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Sending love Michelleanne… spring’s coming
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That’s so funny… I was just reading your posts.. hubby walks in and , by way of explanation I say, it’s my little group… the one Dave was in… and now I’ve read your posts and you both mention him. I think , if he is with us, he’s feeling quite pleased that he’s still very present here… that’s lovely., thanks Dave😘 I do…
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Thank you our dear Audrey, thank you very much for that little “pick me up”. You are a treasure. And you’re right too, the plants are starting to get ready to burst. spring is definitely in the air down here in the Black Forest. Although grey today… I’m on the sofa, just snuggled down for a rest. you’re both with me…
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That’s lovely to hear you’re content at home. I am too, I wouldn’t want to be anywhere else. But I just feel physically challenged and would love to get a bit of that independence back from life before the illness. I guess it’s up to me. love Helen
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Oh my … I could have written that myself Michelleanne, it doesn’t change anything but it’s warming to know we’re in this together. I’m just so low on motivation for absolutely anything… perhaps spring will change things a bit. i hope you’re both doing ok and your chest is a bit productive Michelleanne. the days are at…
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Your message warmed my heart Audrey. Thanks for checking in. I’m having a very shapeless, nothingy day so your message has been a little highlight. I hope your daughter is keeping positive. yes, I agree, Michelle, you’re going to help a very lucky person. much love to you both, Helen
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hello Michelle Anne, Nice to see we got back in to the forum. I had a check up today, they’re trying to reduce my medication so that my mobility gets better. The experienced dr that I know well was good, but there was an inexperienced young trainee who wound me up. He tried to tell me that my deterioration in energy,…
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hi Audrey, Michelleanne, Alison, hopefully your phone settings mean you’ll get a notification for this … yes, the forum is back up and running for us🤗 after a little break. I hope you’re all ok. … and your chest is better Michelleanne. crossing fingers and thumbs for you😍 I hope life is moving on for you and your family…
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Oh Michelleanne, good on you! you’ll be a great buddy, it’ll make so much difference to someone like us. Is it organised by Anthony Nolan? please keep us updated on how it goes, … ie if it’s doable. I think I’d be frightened of getting too deep into negative dark space. My ECP trips overnight sometimes really affect me for…
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I was in an interview today in my clinic. A student is writing a thesis on the needs of gvhd patients and recorded the interview one and a half hours, quite intense. It was quite emotional. Of course I had to mention our Dave and Anthony Nolan and our group. night night you three, love Helen
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That’s a bit weird , must be a feeling… I haven’t been around for ages and just by chance popped in… and here you are, i hope you’re coping somehow Audrey, can’t imagine how, I’m sending a hug… and a hello to your daughter and the children… a hello from Germany:) so far away! sad to hear you’re struggling Alison. Grieving…
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I wrote the message at the bottom ages ago, but forgot to post. so sorry to hear about hubby Audrey. I hope he’s picking up after the major surgery. It’s our age… we’re really noticing it here too. It feels like we’re getting old in speeded up time lapse. My eyes are making a difference still, but it is treating the…
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guess it won’t help , but mucosolvan… plenty of it.. and many months and months hoping and lots of drinking water helped my cough in the end… but I think you’ve had yours about a year already Michelleanne. I do hope it goes eventually. Is it productive or dry? Ive found a good resource from Harvard medical school. I just…
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Hello, The vertigo symptoms sound challenging Michelleanne, … it would be nice to know why.. I hope it’s not too bad and you can cope. I’m being kind to myself at the moment which seems to help me be strong… for example , I lay down on the sofa today and didn’t have my inner critic feeling bad about it, even had the telee…
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Thank you Michelleanne, it counts hearing it from you because you know what you’re talking about. And how it is to be frightened. but I will ask them if it’s a risk and if there’s any treatment of any kind. In the past they’ve just said no. love and thank you for being there. Even if we don’t check in so often. how are…
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It’s already October… wow! thanks for being there. I hope your daughter’s shingles is better Audrey. apparently it takes ages. Mine was a milder form, had it round my ear. Today I got back from the clinic after overnight for my ECP treatment, leukapharese. Unfortunately spent the night in one of the rooms I was in for…
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Hello Audrey, hello Michelleanne, and maybe hello Alison , yes Audrey, you’re right, we don’t check in so often, but, like you, this little bit of contact is ‚there‘ even when not active. Audrey, just a bit of info, at least if only anecdotal… I feel very proud, relieved, grateful… that I’m NOT a cancer patient.. like your…
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Hello Audrey, Michelleanne and Alison, I’ve been out of the loop for a while. I got the news about our dear Dave passing just before my trip to England. It has really affected me. I don’t think he was that unwell, apparently an embolism. I was relieved at least that he went very quickly. So sad. I think he had a…
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Hi Michelleanne, I’ve sent you a direct message. H x
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Hello, I’m struggling with a cough and cold and my old gvhd feet… I’m also struggling with a new mobile which I can’t understand. .. and on the back of all that, I’m supposed to be enjoying myself with family in my homeland… first visit for 5 years. Really exhausting, they want to help but I’m feeling stifled, a very…
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Thanks Michelleanne, sorry to hear that about your chest diagnosis ... but impressed that you're keeping positive some how despite it all... I'm sure you have your ups and downs though. Hoping you can feel a bit of control over it, that the antibiotics can keep it in check a bit. My initial ' up' after my little holiday is…
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Hello all, I often wonder how things are going, with you all... This is a long one.. Michelleanne, have you got a definitive diagnosis for your chest problem? Or is it getting gradually better? I do really hope that you start to see some improvement, however small, just to give you some hope and motivation... although hope…
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I'm with you in my thoughts Audrey. Hope you're ok. Can't imagine how you're coping. So pleased about your daughter, Love ... to all too, hope you're all ok. Helen