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HelenSpeedwell
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i’m glad you’re happy at home Michelleanne. Same here, but days between sofa and bed were very reminiscent of ‘then’. I got out for the first time today. i’ll have to watch it, a cough can go on forever…as you know Michelleanne. i’ve found inhaling with salty boiling water really useful. my doc suggested it and she’s…
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oh dear, a week😏 ive been in pyjamas since saturday. You’re winning 🤭😍 cancelled everything. i just want to feel that i can do things again if i want. nothing special. can’t do much anyway. Auds, thinking of you and sending kind thoughts and hugs. helen
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just dropped by to see how things are… oh dear, chest infection and fluey bug. unfortunately i’ve been in bed for 2 days already with just the same. it’s horrible cos it reminds me of when I spent all day every day in the horizontal. At least the temperature has gone. Crossing fingers. How’s things Auds? sending love to…
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Seem to be in a new phase of my gvhd. Reduced immunosuppressant seems to be making the gvhd symptoms worse…skin, eyes etc but the good thing is I feel generally better in myself, just a bit, but more like a normal human being. Weird but truly, I can think better. I hope you’re both doing ok. Auds, I hope they are getting a…
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I hope you’re stable Auds .🙏🏼 love to you both Helen
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Thinking of you Auds. thank you for the sign of life Michelleanne. sending love to you both. Helen
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Wonderful!! 😘
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thinking of you both, especially you Auds, no magic wand but lots of love, Helen
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Been Thinking of our little group. let’s hope we get through the week ok. And if it isn’t, that we can take things gently. love helen
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hi Both of you, Auds…. I spotted your sign of life… the “like” button under Michelleanne’s post. It warmed my heart. But we don’t expect it… you’re doing well focussing on yourself… whatever You need and whenever. we’re with you . I’ve had two consecutive days of feeling good… with its ups and downs but it’s such a joy. I…
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hello you two, I just looked back at your 6th October message Auds, maybe you have the surgery behind you, or hopefully soon. I’m telling myself no news is good news and that you’re simply feeling awful and that you’re hopefully looking after yourself… and letting Graham do his bit too. Hopefully your daughter and the…
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We’re thinking of you Auds, sending our love. night night ,… hoping you’re ok.
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😂 in on my own tonight… I ought to clean the shower, friends coming for the weekend… but I think I’ll go for a bag of crisps and all creatures great and small… the path of least resistance as they say😘 our thoughts are with you Auds… I’ve got enough crisps for all three, of us, it’s a big bag. I had a vaccination yesterday…
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Have to laugh… my hair appointment wasn’t for highlights… I’m not like that… my life is so boring … , I meant going to the hairdressers was a highlight in my week. Only go twice a year. thinking of you both and especially you Auds. hope you’re both having a peaceful evening. love helen
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thank you for the info Auds . I hope they’re satisfied with what they find and what they manage to do in the op. That’ll be good to get behind you. Like Michelleanne says, we’re here for you now. X I talked to my hubby about your story Auds , and I found myself saying, she’s always so kind and sensible, I think she’s going…
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Oh no Auds, very sad to hear your news. we really are here for you. I’d be grateful if you feel up to it to if you could let us know a few facts when you get some. Nowadays it’s really not the big c word it used to be. There are lots of different factors that define it. Of course it’ll be difficult to stay calm but…
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Lovely to hear from you both, I can only shake my head in disbelief at the sentence. I can’t imagine what you’re all going through Auds . A good friend of mine at college lost her Dad to a drunk driver at a young age … I’m deeply shocked that it can be treated so lightly. Begs belief. I really had to read it twice to grasp…
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Hello you two, it’s heart warming to hear from you both and to read your kind words. Auds , just reading your news is daunting… and it seems like you’ve been the one holding things together. Sending you our love , I don’t know what else we can send you. Words fall short. There’s a magic spell attached here for some peace…
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Hope your chest is better. x
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Off to England, new Forest next week. Black Forest to new Forest 🤭 I hope you’re both keeping ok. i’m going to do all I can to stay well this time on holiday. Mask, gloves…. I’ll look ridiculous but hopefully will avoid the clinic visits abroad. love to you both, helen ps. I wrote this ages ago but it didn’t send. Probably…
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I’ve been thinking of you Auds, and the court case date has come and gone… 8th - 12th July, I do hope you’ve been able to find strength to get through it. It must be like triggering it all over again. Terrible. You are a hero , even if you don’t feel like it. i hope the grandchildren have been able to distract you, and…
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You poor thing. my Kristin Neff website helped me a lot. It has a few free good resources. Also the learning platform ‘future learn’ helped me get into mindfulness, free online courses created by top universities. About all sorts of topics, but mindfulness and self compassion was the thing I needed then. You can pay if you…
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Best of luck. I hope they can make a positive difference for you. love helen ps. I had negative experience with therapy although didn’t know at the time. There’s a good woman’s hour on radio 4 about therapy. I found it an eye-opener.
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I’m writing on the sofa after a deep lunchtime sleep, but things are better since they re-increased my immunosuppressant again. back to square one but feel ing better for it. my plan is to try again in a few weeks, this time with my gps help. it was obviously my gvhd making me struggle and leading to infection. 🙃 I think…
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just tried to upload a photo of my Ecosystem… LOL… aka garden. I’m in love with it but it’s very overgrown. il be thinking of you and family on 8th. sending strength and love Helen ps. Started more antibiotics today. I have a referral to a urologist to find out what the problem is. … I forgot to hit send and just found…
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Hello Michelleanne, something I found really helpful for the antibiotics is -poor translation- intestinal flora- last year I was on antibiotics that really grounded me, emotionally floored me… but after that horrible experience I always take “darm flora” (lactobacilli/ bifidobacteria/ streptococcus thermophilus……
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My dr told me to take my iron before I go to sleep on an empty stomach. I take a tiny bit of vitamin c in water with it. cant nibble on things in the evenings though. Shame. the iron has made a big difference to me. now I’m just always indoors cos it’s so hot. Can’t cope in the heat. love to you both, helen
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Lovely to hear from you both and to hear that about your daughter! Wonderful… it’s making me smile now writing… great news, inspiring. sorry to hear about your chest Michelleanne, that’s been going on for ages. I was just reading the side effects of Myfortic, and chest is one of them. I hope they keep onto it and try to…