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Julemy

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Julemy
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  • Hi Natalie, there are a number of reasons why neutrophils can drop and viral (or other) infections are one of them. So it is quite normal. Are the rest of your bloods ok? If your consultant is not worried then you shouldn't worry. I'm sure they will monitor your closely and do all sorts of tests if they were worried.
  • Hi all, I thought I’d give you an update. My daughter’s counts continued to drop. Her body temperature also increased and crp went up to 40. They’ve done all sorts of tests and excluded that it’s the adenovirus causing this. They also stopped the septrin. Chimerism is good at 96% T cells and 100% all the rest in marrow and…
  • Hello all, my daughter’s counts have continued to drop. The antiviral has brought the adenovirus under control. At some point CMV became detectable but was negative on subsequent tests. HB seems to be stable at around 80 but platelets are 40 today and neutrophils don’t stay above 1 without regular gcsf. They’ve tested for…
  • Thanks Hayley. Today her counts dropped again. There has been a change this week and it’s that she’s become positive for adenovirus in her blood. She had already been positive but became negative with antiviral. The strategy now is to continue with the antiviral. They also stopped and replaced septrin. Her skin rash is not…
  • Thank you both, also for answering on the other discussion thread. We are beyond anxious, just today worrying about some skin rash which probably is just eczema. I do hope this will get better over time. The bmt process seemed very structured and in a way side effects were expected and dealt with whereas now it’s the…
    in Hello Comment by Julemy May 2018