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KatyB

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KatyB
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  • Well it’s been a rough time and I’m now on a course of antibiotics for chest infection ! Seeing Drs again in week to hopefully set a new date for admission,I’ve now been in remission for 7mths which is amazing,that’s the trouble with this disease is that you never know when it’s going to rear its ugly head again.Hoping the…
    in More delays Comment by KatyB June 27
  • Hi all,well after a long search for a suitable donor I’m going in next week for second transplant,they are using cyclophosphamide instead of campath this time which apparently helps reduce graft vrs host issues.Ive spent last few weeks getting as fit as I can for this but now it’s here I’m pretty nervous,wish me luck. Katy
    in Relapse 6yrs post STC Comment by KatyB June 12
  • Thank you so much for your reply Dan,I really need some positive stories of second transplant experiences,I’ve been so well and had got myself physically as fit as possible so I’m hoping that will help me through this process,I’m being admitted tomorrow to start first round of chemo,I will check out the helpline aswell.…
    in Relapse 6yrs post STC Comment by KatyB October 2023
  • Hi Steve thanks for the advice I'm already feeling better knowing I can share on here and get sound advice by people who have gone through the same experience. Tomorrow is my 100 day mark and I can see how far I've already come so onwards and upwards! Katy
    in New to all this Comment by KatyB June 2018
  • Thank you Hayley I will heed your advice.
    in New to all this Comment by KatyB June 2018
  • Hi HS17 thanks for sharing your experience I think you are right that all the focus is on the physical recovery but I guess resources are limited and psychological help down the list of priorities,I am really trying to help myself by getting out and about and getting fit again (used to hit the gym 3 times a week) I think…
    in New to all this Comment by KatyB June 2018
  • Hi Rachel yes my CNS mentioned counselling,there is a long waiting list but I may well put my name down as I had a horrible panic attack today as the enormity of what's happened caught up with me,thanks for the advice.
    in New to all this Comment by KatyB June 2018
  • Thanks Greg it still all seems surreal,I need to be thankful each day I feel well but the diagnosis just terrified me and that will take time to process I guess,it's helpful to read all the positive posts.
    in New to all this Comment by KatyB June 2018