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Mandimoo0
Comments
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Thank you hauled I do feel less daunted by the prospect of ecp thanks to Steve. .and I am going to look into committing in the new year..I can't wait to get off these meds and get a normal life back! Am now filled with hope and am feeling positive towards the treatment. Thanks for all your support Amanda
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Thank you Steve that is very reassuring and I'm definitely going to go for it! I had been with one consultant for ages and he never once mentioned the treatment...I moved to a new one and it was the first thing he said to me!!! Anyway..I'm thankful for your response I'm feeling much more positive about it now
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Thank you Steve that's really helpful..I don't think I can carry on on all these steroids and drugs forever..I think I will give it a try. My neatest hospital for ecp is guys. Are there any side effects that I should worry about? Thank you again very good to know it worked for you..gives me hope!
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Thank you Hayley and Steve, I hadn't heard of ecp..I'm under Hammersmith Hospitals transplant team so will ask about that. We are reducing the steroids every 2 month by 1mg as my body flares up at the smallest change. So its a long process. My employer is a gp I work in the NHS. .so my work place (gp surgery) is a risky…