It looks like you're new here. If you want to get involved, click one of these buttons!

Default Avatar

Howdy, Stranger!

It looks like you're new here. If you want to get involved, click one of these buttons!

Please read the house rules and keep this community safe for yourself and others.



Last Active


  • Hi helen i don’t eat spicy food , I can’t manage dry food , I have a gel for dry mouth , doesn’t really work my mouth gets very sore and lumps in my mouth and tongue,I have I’ve been given a steroid base tablet I put in water and rinse my mouth upto 4 times a day when needed , or twice a day when not as bad , it doesn’t…
  • Hi all i hope you make slight improvements at least that’s moving forwards , im not to bad , my chest is a lot better after taking these low dose of antibiotics , my immune level is still low , nothing they can do for me there , gvhd flare ups are so painful in the mouth and gullet I’m back to clinic next week so see what…
  • Hi helen i think mental strength helps so much , I’m trying very much to listen to my body pleased to hear you feel a little better it all helps stay strong x
  • Hi all sorry I haven’t been on here for a chat , I haven’t felt in the right head space . now after change of medication for depression and emotion I feel so brighter I feel so positive hope it continues , everything else is still the same I really wish you all brighter days , I can t help chatting about different meds and…
  • Hi Dave I really hope you find some ease soon , don’t give up you’ve come so far even if you don’t think so ❤️
  • Hi helen i know how you feel , one step forward then 3 steps back , I like to knit when I’m not so tired or I read hope they can sort something for your feet & you feel stronger soon ❤️
  • Hi all i haven’t had good taste buds since 1998 due to radiotherapy , I can’t taste mild food ,but can’t eat spicy , I really hope your movement is getting better 🤞that will make a big difference stay strong❤️
  • Hi Helen that’s good news about your taste buds , it’s awful when you can’t taste food take care xx
  • Hi helen i feel like that a lot , my memory , I loose my train of thought , I don’t think of dying , I have terrible mood swings some days , I think it’s just part of the course I’m trying to be kind to myself and give in some days take care stay strong ❤️
  • Hi all hope you have a peaceful Easter Day , please be kind to yourselves ❤️
  • Hi all pleased to hear from you all , we all have our struggles in all different ways , I wish you all peace ,happiness and positivity stay strong and remember we never walk alone ❤️
  • Hi helen i think our bodies have gone through so much , we just have to do what we can when we can , hope you have more positive days my ct scan has come back not showing bronchitis , I’m always breathless don’t know if it’s scar tissue or not I had 2 rounds of conditioning chemo before I had my bmt so it could be that ,…
  • Hi helen pleased you feel positive every little helps my chest is the same they don’t know what it is ,my ct scan has shown no signs of bronchitis , but still shortness of breath I’ve crusty kidneys and scar tissue , I have another app in may so see what he says then just maybe it’s part of this treatment and all the radio…
  • Morning helen thats good news , I bet you are so relieved at that 🤞it brings you some ease ❤️
  • Hi all helen I hope you get the treatment that will help and you get ease soon , also the same goes to you Dave , stay strong ❤️
  • Morning all so sorry to hear of your struggles , I haven’t been on this group , as I didn’t feel I could help you in anyway , with my words im struggling more mentally at the moment I have the best treatment and the most wonderful consultants and professors , I never google or question their treatments as I feel they know…
  • Hi helen so sorry to hear are having such a rough time , hope they can sort something out for you soon stay strong you can ride the storm ❤️
  • Hi helen sorry to hear you are struggling , we are all vulnerable , keep positive and strong with the help of your doctors you will get there , have faith in them aswell as yourselve we all struggle , look at how far you have come take care ❤️
  • Hi audrey im having a really tough weekend 10 days positive tests ,struggling mentally and physically hope you are all ok ❤️
  • Hi Dave I struggle everyday with mental health issues , and other things that I struggle to cope with (my dad before he died always look on the bright side of life ) I always think there’s people worse than me and a leat I’m still here keep strong xx
  • Hi all grief is so different for everyone , like everything in life , we all have to do what is best for ourselves I hope helen and Dave I hope you get some ease soon keep strong audrey it’s strange I have the same as your daughter , I thought the same as you that they were the same thing sending my love ❤️
  • Hi audrey ii have them coughs , regular thankfully not hospitalised , I’ve been told it’s secondary still waiting for results from c t scan , I really hope she gets home soon ❤️
  • Hi all ive just had a test this morning ,its awful high temp , bad chest , feeling rough , both myself and husband have it , yeah we’re isolating hope fully feel better soon Dave I hope things start to get better keep strong ❤️
  • Hi all hope you are doing ok ive been feeling a bit down , now I’ve tested positive for covid **** hospital app 😢, had a gp app about my mood she’s said to try some herbal boost powder , so going to give it a try it has good reviews love to you all ❤️
  • Hi beaglegirl pleased talking to Liam has helped even a little bit, you don’t have to say sorry , just wish we could say something that would help , stay strong and take each day as it comes , always here ❤️
  • Hi, you should really contact them back , they might beable to help you if they knew Martin aswell as they have a common bond with you , try anything please ❤️
  • Hi I still think you should go back to your gp and ask for a grief counselling face to face have you got friends you can talk to or family , you could stay with , or stay with you until you get on your feet a bit ❤️
  • Hi beaglegirl im so sad to hear your pain , I really do think you need to speak to someone , who is trained in dealing with grief , our friend got a teddy made in her husbands clothes , and she hugs that and talks to it , and it has his aftershave on , please call your gp and see if they can help you ❤️
  • Hi beagle girl you are not upsetting anyone on here , we are all on here for help in someway , I agree you need to get the angry feeling out any way you can as you won’t heal, I never felt angry at my diagnosis just worried that I would die and leave my family , I’ve told my husband that I felt so lonely as I was in…
  • Hi beaglegirl i wouldn’t google anything , I think that it would make you tick more , you need to think of the good times , the love you shared , ii ts not your fault things happen , the dr would have done everything for him and so did you please think of the good times and stay positive ❤️