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Michelleanne
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Hi sorry I haven’t been on here for a while , had a rough time over the last few weeks i think we all struggle at different times and different ways helen you sound more upbeat it’s lovely to hear audrey it’s so horrible what this driver is putting your family through I struggle to wonder why people are so nasty stay…
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Hi helen i think the change in the weather makes my cough worse , you should never think of yourselves as a disabled loser , we have to learn to be more kind to our selves we all go through hard times never gets any easier stay strong ❤️
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Hi helen i don’t no what is causing it , I’ve had my flu& Covid vaccine so now I’ve got cold symptoms having a day like that does you good , I sometimes have days like that ,just a afternoon with a nice coffee and a biscuit in front of a lovely warm fire the simple things give you the most pleasure 😂 enjoy your cosy days…
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Hi helen lovely to hear from you I would it might ease your mind a little , as long as you can cope with the answer if it’s no I’m not to bad at the minute , having trouble with symptoms like vertigo don’t no where it has come from oh r it’s the cold weather always here whenever you want to chat stay strong and take care ❤️
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Hi helen your news is promising , pleased your cough isn’t gvhd we can’t help everyone only listen everyone is so different with there recovery , doesn’t mean what Dave went through would happen to you please don’t think like that stay strong take each day one at a time ❤️
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Hi audrey were all struggling in our own way ,I’m trying now to get my had round now that I was a cancer patient , and that I am a survivor just like you both it’s hard when my mind wonders back my gvhd is manageable but sore I really hope you don’t get many setbacks now the winter is coming round , audrey I hope your…
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Hi audrey sorry to hear about your worries ,I’m not having a good week, hopefully better day tomorrow you have and are going through so much stay strong ❤️
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Hi beaglegirl im sure Martin is , he’ll be watching down on you smiling with pride❤️ wow look at how far you have come , that is such a wonderful charity . im plodding on good days and bad so very happy for you good luck with your motorbike test ❤️
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Hi beaglegirl lovely to hear from you , sounds like you are coping very well , Martin would be very proud of you well done for holding a event for two very worthy charity’s you carry on being strong love to you ❤️
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Morning Helen, oh dear that’s all you want in you’re holiday a new phone sounds very frustrating , I suppose you’re family are just trying to help , you’ll be in a routine at home , in my mind I can do all sorts of normal things , I try so hard to do it , but then I struggle with my fatigue and pains in my legs it’s a…
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Hi helen , you sound so well , you’ve come so far sounds like you are enjoying life a bit more hope this continues I’ve being told I have secondary hypogammaglobulinaemia and chronic kidney disease treatment is low dose of antibiotics Dave I hope you are ok ? Never heard from you in a while ❤️ audrey I hope things are well…
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Hi all helen reading your post you sound such a different person , very positive and determined and lovely to hear , Dave I hope you are doing ok ? Audrey It sounds like your daughter is doing amazingly well I’m so very proud and happy at what I hear ❤️ my chest is a lot better nothing else to do at the moment 🤞my gvhd is…
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Hi all it’s nice to hear that we are doing a little better , we do get ready for a bit positivity it brightens my day I was at clinic on Thursday my professor is very pleased with me progress and to continue with my care and meds my flare ups are normal and part of the course so I’m happy with that I’m thinking more of my…
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Hi helen i don’t eat spicy food , I can’t manage dry food , I have a gel for dry mouth , doesn’t really work my mouth gets very sore and lumps in my mouth and tongue,I have I’ve been given a steroid base tablet I put in water and rinse my mouth upto 4 times a day when needed , or twice a day when not as bad , it doesn’t…
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Hi all i hope you make slight improvements at least that’s moving forwards , im not to bad , my chest is a lot better after taking these low dose of antibiotics , my immune level is still low , nothing they can do for me there , gvhd flare ups are so painful in the mouth and gullet I’m back to clinic next week so see what…
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Hi helen i think mental strength helps so much , I’m trying very much to listen to my body pleased to hear you feel a little better it all helps stay strong x
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Hi all sorry I haven’t been on here for a chat , I haven’t felt in the right head space . now after change of medication for depression and emotion I feel so brighter I feel so positive hope it continues , everything else is still the same I really wish you all brighter days , I can t help chatting about different meds and…
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Hi Dave I really hope you find some ease soon , don’t give up you’ve come so far even if you don’t think so ❤️
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Hi helen i know how you feel , one step forward then 3 steps back , I like to knit when I’m not so tired or I read hope they can sort something for your feet & you feel stronger soon ❤️
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Hi all i haven’t had good taste buds since 1998 due to radiotherapy , I can’t taste mild food ,but can’t eat spicy , I really hope your movement is getting better 🤞that will make a big difference stay strong❤️
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Hi Helen that’s good news about your taste buds , it’s awful when you can’t taste food take care xx
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Hi helen i feel like that a lot , my memory , I loose my train of thought , I don’t think of dying , I have terrible mood swings some days , I think it’s just part of the course I’m trying to be kind to myself and give in some days take care stay strong ❤️
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Hi all hope you have a peaceful Easter Day , please be kind to yourselves ❤️
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Hi all pleased to hear from you all , we all have our struggles in all different ways , I wish you all peace ,happiness and positivity stay strong and remember we never walk alone ❤️
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Hi helen i think our bodies have gone through so much , we just have to do what we can when we can , hope you have more positive days my ct scan has come back not showing bronchitis , I’m always breathless don’t know if it’s scar tissue or not I had 2 rounds of conditioning chemo before I had my bmt so it could be that ,…
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Hi helen pleased you feel positive every little helps my chest is the same they don’t know what it is ,my ct scan has shown no signs of bronchitis , but still shortness of breath I’ve crusty kidneys and scar tissue , I have another app in may so see what he says then just maybe it’s part of this treatment and all the radio…
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Morning helen thats good news , I bet you are so relieved at that 🤞it brings you some ease ❤️
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Hi all helen I hope you get the treatment that will help and you get ease soon , also the same goes to you Dave , stay strong ❤️
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Morning all so sorry to hear of your struggles , I haven’t been on this group , as I didn’t feel I could help you in anyway , with my words im struggling more mentally at the moment I have the best treatment and the most wonderful consultants and professors , I never google or question their treatments as I feel they know…
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Hi helen so sorry to hear are having such a rough time , hope they can sort something out for you soon stay strong you can ride the storm ❤️