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Michelleanne
Comments
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Hi Helen yeah we are still and I’m so blessed , it is a struggle , we should start a club lol
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Pleased to hear things are starting to look up , we have all been through a lot , I can’t remember a lot of what went on , I was in hospital 8 months spells in icu which I can’t recall I can’t think of how many close calls I had but with love and great support and trust in my team of dr and professors wonderful nurses and…
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Hi aud good to hear her temp is coming down , we have a wonderful nhs , we wouldn’t be here otherwise and this wonderful charity , hope it’s going to be a better day today give her our best wishes michelleanne
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Hi all keep strong , I’m sending my love and best wishes , I was exactly the same , you think things aren’t going to get better , but it does , it is a worrying time I’m not too bad take one day at a time it’s weird not going for check ups all the time , I miss them all at the hospital keep strong and keep in touch…
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Morning I was just thinking about you all yesterday , I did exactly the same with my feeding tube , when I went into icu they put a longer one in ,it is a very bumpy road and a lots of ups and downs , keep strong , best wishes to you all michelleanne
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Hi helen i do read , and watch the television on a night , also knit easy patterns , I love peace and quiet and being outside , our grandchildren keep me going and look after me very well even though they are young , reading other peoples messages give you hope , as only people like us know what’s it’s like best wishes…
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That’s good news gives me hope , I’ve gone 2 years , I’m 59 it’s very hard some days mentally and physically , my moods are very changeable and my memory is so poor , I just get on with how I feel that day , I’ve been like this on and off for 25 years since having Hodgkin’s disease now with leukaemia and my bmt wonder if…
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Hi Helen I was in hospital 8 months right through covid lockdown I have dry skin and sore mouth and throat , it is something we have to live with and keep taking medication , as I say this is a new way of life now I’m not the person I was before I take each day as it comes best wishes michelleanne
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Hi audrey & babs So sorry to hear , you are having a worrying time, keep strong hope you turn a corner soon best wishes michelleanne
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Hi you’re very welcome , I hope it helps you and your daughter , let’s hope for better news keep strong michelleanne
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Hi sounds like we’ve all been through the same , we are in a very special club the survivor’ s give you’re daughter our best wishes michelleanne
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Hi audrey hope all goes well with the trail , best wishes michelleanne
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Hi audrey i spent 7 months in hospital during lockdown , I couldn’t have any visitors , things were touch and go a few times I couldn’t eat I lost so much weight ,was given a feeding Tube had time in intensive care can’t remember all of it , there were times I didn’t think I would come through it , but here I am 2 years…
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Hi Audrey how’s things going , hope all is ok michelleanne
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Hi audrey you are very welcome , I’m pleased it helps , I wish I had know about the forum before , it helps a lot talking to people who have gone through it . so sorry to hear about you’re son , it’s a very hard time for you, hopefully you are turning a corner best wishes michelleanne
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Hi Audrey I went through exactly the same , it is a awful time , my husband says he feels so helpless , I hope the ct scan comes back ok . hopefully this is the turning point for the infection keep strong best wishes michelleanne
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Hi audrey great to hear you’re daughter is a little brighter and her markers are coming down , keep strong michelleanne
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Hi I was exactly the same , I had my ecg in bed because I was so weak , my temperature was very high 40 plus spent time in intensive care & 7 months in hospital without seeing my family because of covid . but I have a wonderful team at freeman’s hospital that pulled my through and still keep me going , they tell you how…
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Hi audrey hope things are a little better this week , that was a regular thing for me , I had to have nurses take me for a short while , I would have Starbucks drinks of cold ready made coffee , milkshakes and icecream , then I lived on cream crackers . it is a very hard time a lot of ups and downs , I still take everyday…
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Hi , Audrey I went through the same during and after my transplant , I had a tube in my nose down into my stomach , I slept a lot and a very high temperature ,once they got my meds right .everything changed and turned a corner , I enjoyed drinking ready made creamy iced coffee , and my husband would bring in what I fancied…
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hi , I had my transplant in the height of covid and I went in the week of lockdown and apart from 7 days at home I was in 7 months , we have kept ourselves so safe , and we really don’t mix with people
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Hi dave i have all the problems you are talking about , I was diagnosed in 1996 with non Hodgkin I was left with chronic fatigue I was told then just to get on with it . then in 2020 with aml and had a bone marrow transplant 2 years ago , and everything is so much worse , now I pace myself if I know I’m doing something one…
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Thankyou I’ll have a look at that
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Hi Steve I totally agree with everything you say I am so content with everything michelle
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Hi steve it is the very hardest thing I have ever been through , it was touch and go a few times made harder with covid , not being allowed to see anyone , hard for my family . I have a amazing team at the hospital and a wonderful family , they support you , but don’t understand . i say this is the new me , the old me…