Please read the house rules and keep this community safe for yourself and others.
Michelleanne
Comments
-
Hi audrey, I had days like that , hopefully tomorrow will be a better day , my husband said that , he and family , couldn’t visit me because of covid it was months before I saw them 8 months before I saw our eldest daughter and her children, if like me , I’m stubborn and it’s not going to beat me , I have a wonderful…
-
Hi all I know exactly how you all feel , we face different challenges everyday , I never thought it would be this hard , but at least I’m here , I try and not be so hard on my self , I do agree I find out more from this app , sharing people’s experiences you are all in my thoughts remember you never walk alone michelleanne
-
Hi beagle girl my lines had to come out because they couldn’t find my infections , they put me on a drip for a few days , with antibiotics as they struggled to get some , that I wasn’t ellergic to hope all goes ok after getting his lines out best wishes michelleanne
-
Hi helen im the same as you , also get a lot out of this forum , you all understand what I’m talking about , as we’ve all been there , where drs understand but not like all of us you help me so much and I’m very grateful love & best wishes michelleanne
-
Hi audrey your daughter sounds like she is making good progress , wish I could have managed that , it was very hard for me to eat , as I had a feeding tube in , i manage little better now , I’m a weird fussy eater no tastebuds , and a sore throat I’m worse than the grandchildren , I’m always getting wrong for not cleaning…
-
Hi meerkat , I am exactly the same , I’ve been told not too be so hard on my self , with what you go through . it does get frustrating , my thyroid levels change , I’m at the age too a menopausal woman , but have been for 26 years since having non Hodgkin’s lymphoma , that’s what caused the leukaemia this time , I am also…
-
Hi helen i can’t get anything like that I walk the stairs and do chair exercises but doesn’t help , maybe I need to be more patient best wishes michelleanne
-
Hi everyone I eat the weirdest of food , I’m off instant coffee , meat , alcohol anything fizzy , I enjoy nice soft bread and butter lovely to hear from you all michelleanne
-
Hi Helen I was given supplement drinks when I first came home special food because I had a feeding pipe in , anything is better than nothing I suppose michelleanne
-
Hi I’m 2years post bmt and lately I am having pains in my legs , hip and other joints , I haven’t had steroids , no help since I came home , apart from pain killers don’t know what it is , the hospital say you can get different side effects so see how I go best wishes michelleanne
-
Hi Dave I am still the same with my food now after 2years , but I don’t have good tastebuds , with having radiotherapy after having non Hodgkin lymphoma , 26 years ago , then having a bmt for leukaemia so I eat less than a child and only food I fancy which some days isn’t a lot and it’s forced , I’m more a pudding and…
-
Hi audrey so pleased to hear you’re daughter is managing at home , I was exactly the same , take one day at a time , we are all at different stages . Don’t expect too much I found my eating habits have changed so much , I eat what I fancy , I lived on soup , ready brek and milky coffee I still don’t eat a lot , I don’t eat…
-
Hi babs hope your daughter is making steady progress, it is a very rough ride for everyone involved , it is a new way of life for me too , wish I’d found this forum early best wishes michelleanne
-
Hi auds21 so happy to hear your daughter is home , I’m sure it will , take all the help you can to help her I lost over 3 stone , now 2 yrs on ihave regained some of my weight , take one day at a time take care keep in touch michelleanne
-
Hi all thats wonderful news audrey , about your daughter coming home , so pleased for you all keep up the good work this is the turn around we were talking about , her little boys will be so excited , I know how strange it will be, hi beagle girl sorry to hear about your husband , it is a very rough time for everyone , I…
-
Hi Steve it is very helpful , to hear how people are coping and have coped , the specialists are amazing people and we are so lucky to have them reading what other patients have gone through has helped me so much , in a way that drs can’t , and I’m very grateful for that please keep in touch everyone together we’ll get…
-
Hi auds thats wonderful news , so pleased to hear that ,it is very hard time for everyone , and worrying You’re daughter is now going on the uphill turn I’m always here to help if I can it’s my way of giving something back good luck and I hope everyone goes from strength to strength keep in touch xx
-
Hi helen thankyou for that tip I’ll have a look michelleanne
-
Hi audrey sorry to hear you’re daughter has had another rough day , hopefully they will get things sorted soon I hope people find this site as helpful as we have you and yours are always in my thoughts and prayers keep strong take care
-
Hi , to you both i understand where you are coming from , I never saw my husband and family for 8 months or a visitor because of covid , i used FaceTime on my iPad or phone everyday so I could keep in touch , give me something to look forward and to see our grandchildren the doctors will be discussing her treatment behind…
-
Hi audrey please do , I hope things start to get better and she turns the corner for your daughter and everyone who is struggling best wishes
-
Hi audrey this site is a good life line to me , talking to other people who have gone through and their loved ones , I’m eternally grateful to Anthony Nolan trust and the nhs for what they have done , for me and others , I hope we all get to living a happy and wonderful life , I hope your daughter feels better soon and her…
-
Hi Helen I feel the same , we don’t go anywhere , I get all my shopping delivered , we met friends for coffee , it was nice to do something normal
-
Hi helen maybe it is , it’s strange that you feel close to strangers , we are right with you everyday,
-
Hi pleased to hear your daughter is a bit brighter today , pleased all this helps you , it helps be a great deal keep strong best wishes michelleanne
-
Hi Helen , audrey i totally agree that having a positive attitude does help , and having someone to talk to really helps , but it still is very hard the site really helps me because we have and are going through it audrey I was exactly the same my pic was changed to a Hickman line , let her cry , has the hospital got…
-
Hi Helen yeah we are still and I’m so blessed , it is a struggle , we should start a club lol
-
Pleased to hear things are starting to look up , we have all been through a lot , I can’t remember a lot of what went on , I was in hospital 8 months spells in icu which I can’t recall I can’t think of how many close calls I had but with love and great support and trust in my team of dr and professors wonderful nurses and…
-
Hi aud good to hear her temp is coming down , we have a wonderful nhs , we wouldn’t be here otherwise and this wonderful charity , hope it’s going to be a better day today give her our best wishes michelleanne
-
Hi all keep strong , I’m sending my love and best wishes , I was exactly the same , you think things aren’t going to get better , but it does , it is a worrying time I’m not too bad take one day at a time it’s weird not going for check ups all the time , I miss them all at the hospital keep strong and keep in touch…