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Michelleanne
Comments
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Thanks all that helps a lot michelleanne
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Hi audrey not doing too bad , went for my blood tests yesterday and a lung function test , so have to wait for the results , can’t wait for the warmer weather I love to see everything coming to life after the winter. that’s wonderful news about you’re daughter take each day as it comes I still get very frustrated…
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Hi audrey sorry to hear you’re daughter is back in hospital , hopefully not for long I went through all of that , it worries me going where there is different people about and strange places , but I love been outside , it will give them something to look forward to later , we are all in good hands , we would have been in a…
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Hi helen i had my bone marrow transplant 2 years ago I have a 23 year old German man bone marrow im not too bad got a chest infection so I’m on a lot of meds , we take each day as it comes and enjoy Thankyou for the support it means a lot xx
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Hi helen I have to moistures not every day , only when it flairs up , hope you’re lab results are ok when they come back , I’m in the uk I don’t get my results on the same day I’m still on all my meds I was on in the beginning my blood isn’t high enough to come off them Hope you are peaceful good night god bless xx
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Hi Helen please do I’ve been to see my gp today for steroid and more antibiotics , then bloods taken on Friday and chest X-ray next week , what a exciting life we lead , I hope all goes well for you xx
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Hi all audrey it’s so good to hear you’re daughter is improving slowly , and you also helen , I like super noodles , I eat a lot of fish very little meat as a I can’t swallow it , it takes so much out of you , I find everyday is a different battle we get through it as long as we are all at home and enjoy everyday and every…
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Hi audrey thankyou for that , you are all a big help to me ill have a look at that site myself for fatigue michelleanne xx
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Hi audrey, so sorry you are feeling unwell hope you feel better soon, that’s fantastic news about you’re daughter , I’ll raise my cuppa to her , hope this is start of better things to come , i think about you all everyday , but I don’t want to pester , hope helen & Dave are doing ok much love & best wishes michelleanne
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Hi audrey please keep going with the update , it helps me also , knowing what I’ve gone through , and what’s happening and my feelings are ok best wishes michelleanne
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Morning all audrey I really hope all goes well with your daughter , I was exactly the same , the wait makes you feel very anxious , I was pumped up with different antibiotics and had my lungs cleaned out it’s a very rough time , but I turned that corner and so will your daughter it’s a up hill struggle and we have…
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Morning all sounds like we are all going through things at different stages , I’ve put most of my weight on , but I think it’s more my thyroid , than what I eat I feel everything thing is a marathon at the minute , I hope your plan works it’s worth a try we’ll get through this together lots of love michelleanne
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Hi Dave I had a feeding tube , which affected my throat and made me sick , 27 months post bmt, still struggle with food , my throat still gets so sore , don’t have good taste buds . I hope my love of food comes back , I would be a cheap date if we went out , as I can’t drink alcohol anymore as that makes me sick I joke…
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It is helen , lovely to have people who understand big hug michelleanne
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Hi Helen so sorry you are feeling so unwell , I have painful joints and skin gvhd , another thing to add to the long list , I thought at the beginning of all this , that my bone marrow donor would put things right ( how silly am I ) I can cope with all this I suppose at least I’m still here i totally agree if I lived on my…
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Hi helen I have my recent numbers , my consultant has sent me them , my GP has said it has gone up a lot since having my transplant , have to increase my thyroxin as of today and a blood test in 4 weeks , my iron level is very high 2,000 and something it should be 500 , but my blood count isn’t high enough , so have to…
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Hi , helen i feel the same as you , one step forward to two back , I’m waiting to go and give blood because my iron is dangerously high , but my blood count isn’t high enough yet , also my thyroid count is high and I have high cholesterol so I have more medication to take , never had any bother with either before , so I’m…
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Hi all sorry to hear you are feeling very down , we had Christmas with our immediate family and our new year eves was a early night with a hot chocolate and my book , we don’t mix with people like we did before , we always wear a mask when we are out which isn’t often , it’s a new way of life ,I take each day at a time ,…
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Hi audrey So sorry you’re daughter is back in hospital , I hope she gets home soon , I was exactly the same , I’ve have the virus , borderline hospital the doctor managed with steroids and antibiotics , still had it over a month , nevermind hope you had a lovely Christmas , wish you lots of love and strength , and you’re…
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Hi helen happy new year , to you all we wish you health & happiness michelleanne
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Hi audrey You sound so much brighter than you have in the past few months , I too feel I’ve made some amazing friends on here , enjoy you’re Christmas I wish you lots of happiness , love I’m always here if needed take care michelleanne
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Hi helen we will count our blessings , in our own way and in anyway we can , try not to look to far forward , enjoy one day at a time , I know what you mean about things been annoying I feel like that sometimes , im sat thinking about my donor , wondering what he’s doing , and what a wonderful thing he did for me . you are…
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Thankyou Liam that’s nice to know best wishes michelleanne
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Hi audrey i hope the gvhd eases , she’s a strong fighter and you are doing amazing looking after her my husband has turned into a amazing nurse and carer for a man who has never had to do anything , he cooks , washers everything , he puts up with a lot . it’s wonderful news that’s she’s going home for Christmas , I hope…
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Hi audrey hows your daughter doing michelleanne
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Hi Helen I totally understand you , what upsets me is people say you look so well are you ok now , I don’t answer them now , im so glad i reached out , I’m so happy to message you all , I just feel I want to give you a big hug the kindness we are shown on this forum is wonderful keep strong micheeleanne
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Hi helen my leukaemia was caused by treatment for Hodgkin’s disease, intensive chemo and radio therapy, i too have a fantastic team, it is the toughest battle , I’m the same , we don’t meet people apart from our immediate family and grandchildren I’m so sorry you are having a bad time , hope you have a better day tomorrow…
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Hi audrey it is a very long journey , harder for some than others all depending on our treatment , we will all get there , with a fight and a lots of love and support . this forum helps me greatly , reminds me of what a wonderful world we live in and that there is selfless people in it , that gives people the gift of life…
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Hi Helen , Dave audrey helen you are doing amazing , you are right it is one step forward and two back , keep up the good fight best wishes michelleanne
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Hi Audrey so pleased to hear ,your daughter is a little better , I had problems with my liver I was very jaundice , they didn’t know no what caused it you are doing amazing , we couldn’t do it without the love and support of loved ones keep strong , please keep in touch hope all is well helen & beagle girl best wishes…