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Nichola
Comments
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You're very welcome, Colette. Anytime! I think that would be lovely for your 11year old daughter to go along with you. Obviously, the main thing us post transplant'ers have to 'worry' about, especially over the first few months after a SCT, is germs!! So as long as you all take extra care in that respect (which I'm sure…
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Hi there, Thank you for making contact through the Forum. I hope you are well! My name is Nichola and I am 6 years post SCT and underwent this at the age of 24. I am now one of the Online Community Champions to this forum, in hope that my experiences can help others... like your daughter. I am so sorry to hear your…
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Hi all I hope you're all well! Thanks so much for this - I actually (and very naively) never even considered it could be GvHD? How long after the transplant can we still develop this? Dermovate is also something I never even thought of, thanks for reminding me of this Tony - I haven't actually used this since the early…
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Hello Gail, Welcome to the Forum! I am one of the new Online Community Champions on here, and it's always so great to see new faces on here, sharing their stories :) I am so sorry to hear of your recent diagnosis, it really sounds like you've been through it the last few years! It sounds like you have your general health…
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Hi Clare Just eating as when you can, no matter how big or small, will help keep your strength up :) Just do what you can. Have you tried the nutrition shakes yet? I wasn't a big fan, but on the days I couldn't face solid food, at least having these shakes gave me a little of what my body needed. Post +14 days would be…
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Good morning It's so lovely to hear from you - Happy day +5 to you! :D I actually felt a little lump grow in my throat reading your post as everything you have said is extremely similar to how my experience of my earlier post transplant days were (almost 6 years ago!). I too decorated my room to help my mind and put photos…
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Just following on from the above, I have found the below link on the Macmillan website, which recommends you contact your local council to see whether he is eligible for a blue badge or not...…
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Hello Mandy Thank you for the update, it's so great to hear he's doing so well. Onwards and upwards! I agree with Greg - in terms with getting out and about, everyone's recovery is different so may be best to double check what his transplant team say... however it might sound cheesy but I found the best advise actually…
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Hi Greg How are you doing? Thank you - I'm still off sick feeling sorry for myself (lol) but lots of sleeping and eating tubs of my fave ice cream that rhymes with Jen & Berries should do the trick ;) I totally know what you mean - I too had a very funny reaction from the GP reception ladies when I booked myself in for the…
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Hello, I am so sorry to hear you're going through such a difficult and scary time at the moment. From my personal experience of having treatment over 5 years ago, I am unable to give particular advise on CAR-TCELL therapy and whether or not this will be returning to the UK or not. I really wish there was something more I…
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Hello Mandy, It's nice to e-meet you :) I'm one of the new Online Community Champions, as of last week, and am just catching up with these messages. I hope you don't mind me popping in. It's great to hear that your brother is doing well! I am 5 and half years post Bone Marrow transplant and can totally relate to the…
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Hi Jane I'm really pleased to hear you're enjoying this beautiful weather and trying to take your mind off things by doing 'normal' things :) When we're in limbo at times like these, it's easy for our minds to wonder and sometimes end up thinking the worse... We're only human, and the unknown can be our worst enemy! BUT…
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Hello Jane, I hope you are well! Apologies for only jumping in on this conversation now - I joined the Community Champions just last week and have been looking through past messages and couldn't help but want to respond to your tiredness query... I am over 5 years post transplant now and I'm afraid to say I still suffer…