Please read the house rules and keep this community safe for yourself and others.
Rachelj01
Comments
-
Thanks Gents, I found the comment about the change in adrenalin and cortisone levels very interesting. I think to do through what we have all been through it is perfectly normal to change and find that your ability to cope has been dented. I guess what is hardest is that others don't really see the change and there is a…
-
Katie Good luck, you are in for a tough for weeks, hang in there. When you look back it's amazing how low you go and how quickly you rebound. Thinking of you. Rachel
-
Oh Jane, I am so very sorry to read your news. I will be thinking of you, such a hard decision to make and I hope you have all the support (medically, friends and family) you need at this time. As Steve says please keep us informed and we are here for you as best we can be. Rachel
-
Hi Jane Hello, I'm a new Community Champion and only just caught up with your post. I'm terribly sorry to hear you've had to go through a worrying time with your bloods. I wanted you to know, I'm thinking of you and have everything crossed for positive news. As for the neutropenia, I'm sure you know to stay clear of your…
-
Kate I'm so sorry to read the above. I was 38 when I was diagnosed with AML and was told there wasn't the time to collect eggs. I had the treatment for the AML followed by a transplant and I am now in the menopause so it's pretty safe to say I doubt there is even the smallest chance that I am able to have a child now. At…
-
Hi Loobs I am a community champion and when I was under going treatment a fellow patient was in a similar situation to yourself. As mentioned in Sue's about post they under went a Haplo transplant in 2015 courtesy of their daughter and i'm pleased to report they are doing extremely well. Stay positive and as Sue says have…
-
Hemz I was diagnosed with AML in March 2015. My brother and sister were both tested and I recall a wait time of approximately 2 weeks. Just like Steve my siblings weren't a match, I have everything crossed for you and your family that your husbands brother is a match. In my experience Anthony Nolan and the medical team…
-
Gail Rant away it's good to get these things off your chest. I understand your frustration, as Greg says often the medics don't fully understand themselves. I asked how the stem cells got into the bones...the answer was MAGIC when I pressed for a detailed answer, feeling I was being patronized, my consultant said there…
-
Hi Nichola Like you I'm pale and freckly so have never had a good relationship with the sun. (I didn't have TBI) I was made aware at the time of my transplant that the sun can cause or aggravate GvHD even when using sun block. I think my skin is more sensitive post all the chemo and still being on some meds even though…
-
Gail Fantastic news! Please feel free to ask away any questions you may have. I'll be thinking of you. Rachel
-
Hi MrsB83 Congrats on feeling well & I hope you continue to gain strength. I feel many people have addressed the GvHD & how we all react differently. I really just wanted to wish you well with thecremoval of the Hickman Line. I was SO happy to have my mine, like you I was nervous but compared to many procedures you will…
-
Hi Becky My periods also stopped, the HRT I'm on purposefully causes me to have them however I'm no doctor and I guess the choice of HRT drug depends on a number of factors. I am so relieved to not have menopause symptoms now. The symptoms really dragged me down emotionally, I just wasn't ready to deal with accepting that…
-
Hi Like yourself as a result of the chemo I am now in the menopause and have osteopenia. I was recently prescribed HRT (femoston) and I have to say it's been wonderful. The symptoms of menopause have all disappeared, which I'm very pleased about. After all we have been through to then have your body go through menopause,…
-
Hi Gail I'm Rachel, a new Community Support Champion. I had AML followed by a SCT, it's good to hear you feel well post chemo and sound in good spirits which I believe is key to enduring the treatment and the trauma of the diagnosis. I have my fingers crossed for a positive BM biopsy result, please keep us posted on how…
-
Hi When I was in hospital my brother kindly looked after my dog and friends fed my cat. Obviously, there are potential health concerns with animals post transplant, cleaning out the litter tray etc. I simply did best practise hand washing, wore gloves etc. when such jobs arose. What I can tell you, is my animals were a…