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GailC Total Reaction Points: 0
I have recently been diagnosed with AML and am being treated at the Christie. I have been told I will need a stem cell transplant from a donor. As I am sure anyone who has experienced Christie care will testify it is excellent and the staff are knowledgeable, helpful and supportive. There is nothing like sharing experiences with others though so I know I shall find the discussions posted here helpful and in time be able to contribute support myself.

A bit of background on me. I am a 57 year old retired, fit and active woman with no history of ill health until end of 2015 when I was diagnosed with stage 1 NHL in my cheek of all places. During the early part of 2016 I was successfully treated with 3 cycles of RCHOP chemo and 15 fractions of radiotherapy. In July 2016 a PET CT scan showed no trace of disease. I bounced back and got back into enjoying retired life until March this year when having been skiing twice and performing in two concerts (I am a keen amateur singer) I had a series of coughs and colds that I struggled to shake off. Got rid of it at last and was a bit tired which I put down to post viral fatigue but got on with life. Got back from a weekend away with friends and felt really breathless and couldn't walk upstairs without pausing for a rest I got an emergency appointment with my wonderful GP who took me seriously (I thought it was just a virus) did a full exam and blood work up and sent me back to Haematology as fast as my legs would carry me. Anyway upshot is a diagnosis of AML and I am just through the first phase of induction chemo (DA) and waiting to see how my blood counts recover before another bone marrow biopsy to see if it has worked.

Obviously a scary time especially with such a sudden onset. The theory is that somehow the earlier chemo for NHL (still in remission) coupled with some genetic predisposition to blood disorders has triggered this. However that is a bit academic and fortunately it looks as though I am fit and well enough to undergo reduced intensity conditioning followed by transplant.

So that's my story - all support welcome!

Gail

Comments

  • NicholaNichola Total Reaction Points: 9
    edited June 20
    Hello Gail,

    Welcome to the Forum!

    I am one of the new Online Community Champions on here, and it's always so great to see new faces on here, sharing their stories :)

    I am so sorry to hear of your recent diagnosis, it really sounds like you've been through it the last few years!
    It sounds like you have your general health and fitness on your side though and bundles of positive mental attitude, which will all prove to be extremely beneficial throughout your treatment and recovery...

    I am almost 6 years post transplant from an unrelated donor to cure a rare blood condition I was diagnosed with at the age of 3 (Congenital Neutropenia) and fundamentally prevent AML from developing which was predicted from an annual bone marrow biopsy I had in 2010... so after coming out the other side fitter and healthier than I could possibly have ever imagined, I joined this forum just last month as I felt it was time to share my experiences and any knowledge I have that may help others going through this difficult time.

    I hope you aren't experiencing too many horrid side effects that tend to come with Chemo - and I wish you all the very best for your blood results and bone marrow biopsy. Fingers crossed those little white ones make an appearance for you!

    Please let us know how you get on and do shout if you have any questions that we can try and help with.

    Best wishes
    Nichola

  • GailC Total Reaction Points: 0
  • Dieseldrinker62Dieseldrinker62 Total Reaction Points: 215
    Hi Gail,

    Like Nichola I'm one of the community champions and echo her sentiments about being diagnosed which comes as a shock to us all. I guess after a period of no sign of illness after the NHL you were feeling good, so I'm not surprised you feel scared. Your symptoms of the AML and the speed at which you were put into the system after the blood tests sounds very similar to my diagnosis of ALL almost 5 years ago.

    The good thing is that it sounds like you are feeling comparatively well and have a positive outlook which will help you get through the process. You will have seen from this forum that it is by no means a walk in the park, but hopefully with our support you can get through the treatment smoothly and go on to make a full recovery.

    All the best,

    Steve
  • GailC Total Reaction Points: 0
    Thank you Steve. Yes I am currently feeling very well - just the usual post chemo fatigue- and am currently out of hospital on 'parole' for a week before going back in for another cycle of chemo. Have to go for a cardio MRI and see the cardiologist this week as the earlier chemo for NHL has left me with some minor impairment which they want to try and avoid making any worse. Of course also on tenterhooks to know what the results of the bone marrow biopsy I had on Thursday tell us. But all in all doing OK!
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