Does anyone have a spouse who is having treatment and is also caring for a young family?
I'm really struggling and don't really know where to turn. My husband who is 29 was diagnosed with Acute Lymphoblastic Leukaemia in July 2016, just 10 weeks after our little girl was born in May.
He went through phase one and two chemotherapy and went into remission in Oct/Nov however they found he has some rare mutation cells which meant that he needed to have a bone marrow transplant. We took the decision that this is the route he should take and in Feb this year the transplant took place. It went well and had a few complications but he seemed to be recovering well. However, we received the devastating news a couple of weeks ago that it looks like he might have relapsed.
People say to me that I do incredibly well caring for my husband and our little girl who is just over one now. But it just feels so difficult not knowing what is going to happen next and I'm so scared for the future. Whenever he gets admitted into hospital our little girl is massively effected as she is so confused as to where Daddy is. It can be so emotionally draining sometimes because I feel like a single parent caring for a adult and a child. It's so hard seeing him so poorly sometimes as well because he was so fit and active.
I was wondering if there is anyone else in a similar situation to me? We have friends and family but it's hard as I feel so isolated sometimes as I know everyone has to carry on with there lives, it's just we are living with it everyday and my mind can never be free from it as the cancer is always in our thoughts.