Hello!

It looks like you're new here. If you want to get involved, click one of these buttons!

Howdy, Stranger!

It looks like you're new here. If you want to get involved, click one of these buttons!

Sign In Register
Please read the house rules and keep this community safe for yourself and others.

GVHD lung

CancermumCancermum
in Long-term recovery
Just wondering how many of you have been diagnosed with gvhd of the lung? If so have you managed to find a consultant who has experience in this area. Also if the condition deteriorated further, what are the chances of being eligible for a lung transplant. Is it dependent on the gvhd having stabilised for a certain number of years?
Your help is appreciated.
HelpfulInsightfulSupportiveLOLSpam

Comments

  • Hayley_Anthony Nolan Hayley_Anthony Nolan
    Hi, thanks for posting, I am the lead nurse in patient services. I am sorry that you have concerns with lung GvHD. The transplant consultant should be able to refer you to a lung specialist (respiratory consultant) who is knowledgeable about lung GvHD. You can then discuss treatment options with them including lung transplant. I have do not know of any stem cell transplant patient that has had a lung transplant as there are many factors involved but this is a discussion you can have with the specialist.
    Lung GvHD can be quite challenging so I hope that you are getting the support you need, if you feel that you would like to talk to anyone in our team please give us a call 0303 303 0303

    Thanks
    Hayley
    HelpfulInsightfulSupportiveLOLSpam
Sign In or Register to comment.