New to the forum
I would like to introduce myself and my present condition in the hope to communicate with others in the same situation.
I was diagnosed with myelofibrosis October 2021 and was prescribed Jacavi (Ruxolitinib), Aranesp and other meds to combat any side effects. The result for this was very positive for my situation, then a week ago I had a meeting and told if I was to stay on meds expect an approximate 2 / 5 years (any extra described as a bonus). The only real course of action would be stem cell transplant, for which they have 2 very good matches. My fear and concerns are the process, risks and % of success.
I have approximately 4/5 weeks to make a decision to proceed if the donors once contacted are still willing, has anyone else been through or faced the process who could talk about their experience and choices.
Thankyou for accepting my application to join/register to the group