A two month old baby needing transplant
Hi all, my little 2 month old baby needs a bone marrow transplant for genetic bone marrow failure.
Has anyone been through this with an infant? What helped you get through to recovery? How did you deal with teething, Crawling and them putting their hands in their mouths all the time? We've been at the hospital most of the time, but I am just dreading seeing her weak or in pain after conditioning.
They are planning to do FTT conditioning for her. Has anyone been through it?
Would you try to save a slice of her ovary so she could have children or skip it considering she's got no neutrophils at the moment and it is a procedure which carries risk?
There are a few bone marrow matches identified - some of them 11/12. Would you consider that a good match?
Have your children led normal lives after BMT?
Was the pre transplant conditioning worse than cancer chemo?