Return of mutated gene
I am on Day 389 after my SCT for Myelofibrosis. Until now things have gone pretty smoothly, with just two minor infections. However, at my appointment last week I was told that the mutation which caused the disease, JAK2, had reappeared at a low level (0.9%). Chimerism is 99% (had been 100% for many months. I know these percentages are tiny but I am very anxious that Myelofibrosis may be creeping back. I am due to have a second DLI soon so that gives me some hope, but it's no guarantee. I just feel very helpless and scared.