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Howdy, Stranger!

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Welcome to the Forum! A thread to introduce your self and ask questions


I am Liam, the Patients and Families Manager for Patient Services. Welcome! Thank you for joining.

This thread is in aid of anyone new to forum to introduce themselves or ask any questions you may have not been able to find the answer to.

We realise that the forum can be a little daunting to navigate when you first arrive so our Online Community Champions will be on hand to either answer that question or find a relevant thread that may contain the answer.

If you aren't new to the forum, that's OK, you are still more than welcome to post so we can get to know you!

All the best



  • Thanks for allowing me to join the group! I'm 69 & have ALCL ALK- . 1st time in 2018 it showed up on my skin of my thigh with mets to groin lymph nodes, & had 6 rounds CHOP chemo with remission. Showed up again in 2020 just as covid pandemic began. Mets to groin again but had radiation to back of thigh & rt groin with remission again. Had a large mass pop up in rt neck, CT showed enlarged nodes in mediastinum also. Have had 3 BV treatments, oncologist thinks I'm in remission & wants me to have a SCT consult. I'm in the US & this would be at Ochsner in New Orleans. Would like to hear any SCT pt or caregiver stories. I have 25 rescue cats & dogs & am worried about finding help to take care of them & a caregiver for myself.

  • Hello my daughter was diagnosed with AML halloween 2023. She is 12 years old and will be having a baby cord SCT in a week. I'd love to chat with others who are or have gone through this. My names Emily my daughter is Esmée...hi xx.

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