Hi everyone,
Following information from UK Government and the publication of NICE guidelines, we have updated our advice on the coronavirus for people who have received or are waiting to receive a stem cell transplant to treat their blood cancer or blood disorder. Read our coronavirus guidance here: www.anthonynolan.org/coronavirus
Following information from UK Government and the publication of NICE guidelines, we have updated our advice on the coronavirus for people who have received or are waiting to receive a stem cell transplant to treat their blood cancer or blood disorder. Read our coronavirus guidance here: www.anthonynolan.org/coronavirus
DLI and gvhd
Hi all, had my first DLI treatment this week, the consultants said GVHD often rears its ugly head 10-14 days after. Just wondering what other peoples experience off this is. i am just over a year post transplant and having DLI as my chimerism isn't great really don't want to be back on cyclosporin and steroids if/when GVHD shows up
Comments
Thanks for posting on the forum. I just wanted to say from a medical perspective that the aim of the DLI is to cause GVHD so there will be a reluctance from your team to put you back on steroids and CSA. That said, if GVHD becomes a problem for you they might introduce immunosuppression as obviously no one wants you to suffer but it will be a balance. They will also get you off immunosuppression as soon as you start to respond, so hopefully it wont be for long if at all.
I realise its an uncertain time and it must be hard not knowing if you will get GVHD or not, I am sure there are plenty of people on the forum who will be able to share their experiences of DLI as its quite a common treatment post transplant.
Keep us updated
BW
Hayley