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Hi Jane. I nearly 3 years post a 2nd transplant for AML. Hope you are still progressing well. Colin
Thank you. It is good to hear from you. I have for one reason or another not been on the forum for a considerable time. I am certainly encouraged to hear that you are so far past the 2nd transplant. How have you been keeping? I seem to get everything that’s going....but although it is frustrating not feeling safe to make plans ahead, I am able to enjoy my new life. Is it getting easier for you? I am 20 months post-transplant.
so lovely to see you have posted after quite sometime. I still view the forum from time to time. It’s good to hear your able to enjoy your new life and hopefully you maybe able to plan a little in advance at some point too.
However I know it must be more worrying for you all at present with Corvid-19 around so you take care of yourself.
Thank you Mandy. Feeling quite positive at present and definitely enjoying life a day at a time 😊How are you dong?
Hi Jane. I've done a 2nd transplant for AML and I'm still here. Diagnosed in 2012. Transplant from an unrelated donor. Perfect recovery, or so I thought, until I relapsed after 4.5 years. My specialist suggested I go for a 2nd transplant from the same donor as the first one had worked so well. This time they gave me the donors immune system as well so I have had more GVHD to cope with. 2nd transplant was April 2017 so I have just hit the 3 year in remission mark. If they say go with a different donor they are probably right as you have to trust your specialist and there is no strong statistical evidence one way or another. Good luck. One day at a time. I hope this is of comfort to you. At the time of my treatment I really wanted to find someone who had a similar experience to me. Everyone is self isolating now so you won't be missing much. Take care. Colin
Thankyou Colin. Like you, I really wanted to find someone who has had a similar experience to me. Very much so. There was one gentleman on this forum (Rob) who had a 2nd transplant, but I don’t know how he is doing. Well done on reaching your 3 year mark. I will be 2 years next month. Are you keeping well? Have you anyone that you are in touch with who is “ahead” of you? I find it can feel quite lonely if not. I am feeling well.....just some post-transplant effects which I hope prove to be fixable after this lockdown. I am missing my walks, so not feeling as fit as I was, but happy that I can potter in the garden. Thanks for posting . Have you also got on-going issues, or is it as good as the first time round?