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Long Term Hospital Stays

Hi All,

Was just wondering if others on here have experienced long-term hospital stays post transplant. My fiance has now been in the hospital for ~9 months, with the exception of ~2 weeks about a month after his transplant. GVHD of the gut is what has kept him in there along with having to deal with PTLD. As I'm sure you can imagine he is going a little stir crazy being cooped up his room and is also pretty down/pessimistic about ever getting out. I have also found it very tiring given I work usually 12 hour days and then go to the hospital each night to see him for a couple of hours.

I'm just wondering if there are others out there who have experienced long-term stays like this and have any advice or just general comments on what their time was like while in the hospital.

Thank you,
Krista

Gabby

Comments

  • Hi Krista, I’m sorry to hear that your fiancé has been in hospital for so long. That must be really tough on both of you. Unfortunately I can’t really give you any constructive advice as to how to cope with the boredom he must be feeling.

    Throughout my time in hospital I used to write a blog, which at least gave me something to do for an hour or so each day, though on my worse days, particularly after my transplant I often didn’t feel like writing.

    With access to the internet I used to do genealogical research and as I’d written a draft of a factual book about my family history my time in hospital gave me time to proof read, fine tune and edit my book.

    I guess it’s about finding something that occupies the mind and at least helps pass some of the time.

    You mustn’t forget about yourself either. You sound like you might be in danger of burning yourself out if you’re working long hours and then visiting your fiancé every day. Whilst I realise you will want to see each other as much as possible you may need to think about giving yourself a break now and again. Is there anyone you can share visits with and perhaps keep in touch by phone, Skype or FaceTime? Be careful not to tire yourself out.

    Hope this helps in a small way.

    Best wishes to you both,

    Steve

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