This new category is SO welcome. While clinical consultations with Consultants along with the specialist nurses deal wonderfully with the medical stuff and Maggies drop-in centres [if you are luck enough to have one] or Anthony Nolan's online Emotional Support are great with the emotional stuff, there are a myriad of other things going on which I'm sure many others out there are affected by .
One such for me has been trying to work out how best to deal with clothes that have to be changed and laundered daily during the time when we were applying steroid creams and moisturisers to 90% of my husband's body four or more times a day, saturating the fabrics to such an extent that normal laundering simply didn't touch and his clothes were constantly sticky! Although to a lesser degree, that is still the case. As it happened I did find a solution that works, but if anyone else finds this a problem, perhaps a place to share ideas.
Finding a way round having every minute of every day not being absorbed by health issues - for both of is - has also been challenging. Although his blood counts are currently rather poor so we are still having to be ultra careful, the lifting of the Covid restrictions has meant we have been 'allowed' to calculate the risks for ourselves and visit our [grown up] children and grandchildren [the grandchildren] for the first time since last March.
My husband was diagnosed with MCL in 2011 and having received various chemotherapy and related treatments and radiotherapies is now eleven months post-allograft Stem Cell Transplant. He has just celebrated his 70th birthday and happy to acknowledge and be hugely thankful for the skills and breakthroughs of the clinical teams, researchers and others - specially donors of course!
Out of time now - as usual! but just wanted to say thank you to the A N team for adding this category and hello to others sharing the journey [a term I used to avoid but I'm afraid does somehow seem to fit this phase of life just now].
Best wishes to all alongside.