Hi everyone x
I’m really struggling at the moment with GVHD and in a little bit of a panic x so I am 2 years post transplant which I am so grateful for but I still have horrendous GVHD in my scalp eyes and questionable in my cervix x I have had steroids / Ruxilitinib / ECP. I’m just wondering if anyone else has any magic advice I can have that may compliment my treatment and give the GVHD a massive shove!!
Please please I really am desperate to hear anyone else’s story / journey of GVHD.
I’ve had this flare up for just under 12months
I battled it on my body twice and overcame it but this one won’t budge x
Many thanks in advance
Lynsey **** ❤️