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More delays
Hi all,I posted a while ago about having to undergo a second transplant for a relapse in AML after 6yrs.I have a long journey to get to this point where I was supposed to be in hospital today to start conditioning,however two days ago I tested positive to Covid and parvovirus so everything is on hold until I recover.
The emotional rollercoaster of this has left me feeling exhausted before I even start the process.Im just hoping that the actual transplant will go smoothly after all the delays (I went through 3 possible donors before finding a match) the donor cells are waiting for me,a 9/10 match.
I think I just need another team talk on here to get me up and ready again !
Katy
Comments
Hi Katy, sorry to hear about your run with Covid and Parvovirus. Have they cleared up now and is the transplant back on course?
I hope you're feeling better and have recovered well enough to go thourgh the transplant again.
Best wishes,
Steve
Well it’s been a rough time and I’m now on a course of antibiotics for chest infection ! Seeing Drs again in week to hopefully set a new date for admission,I’ve now been in remission for 7mths which is amazing,that’s the trouble with this disease is that you never know when it’s going to rear its ugly head again.Hoping the new transplant will keep it under control for many more years.Thanks for your continued support 😊
Hi Katy, glad to hear your remission seems to be holding and hopefully the transplant, when it happens, will make it permanent this time. I think we all live in fear of the disease coming back. I'm now 12 years post transplant but it's always at the back of my mind and I'm slightly nervous when I go for my annual checkups. I guess having been through it once I know the signs of the illness I had and wouldn't hesitate contacting my transplant team if anything ever raised my suspicions.
I hope the new date is set soon and the transplant can proceed smoothly. We're always here to support each other so please keep in touch and let us know whow you're getting on.
All the best,
Steve.
All the best Katy. Sorry to hear about the delays and I'm glad you are in remission now. I am now 18 months post transplant and 100% donor cells but still worry about it coming back, especially as I had no symptoms when I was diagnosed. Just have to live every day to the full and keep positive. Can't believe how far I have come from coming out of hospital in a wheelchair for 3 months to now being at the gym every day. Keep positive and all the best.