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Billie_AnthonyNolan
Comments
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Hi Melissa, My name is Billie and I work in Patient Services at Anthony Nolan. Returning to work is something that transplant recipients do worry about and it can be a big step in recovery. We have partnered with an organisation called Working Towards Wellbeing that offers support, coaching and advice for people who wish…
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Hi Dave, As you are a potential donor I am going to message you privately about who to contact. This is a forum specifically for patients and their friends and family members. Best Wishes Billie
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Hi Tom, Thanks for the update. It sounds like you are making great progress! Please keep in touch, and if you need anything feel free to contact the patient services team and if we can help, we will. Best Wishes, Billie
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Hiya, Here are links to both Facebook pages should any patients or family members be interested in following us: https://www.facebook.com/anthonynolanpatients/ https://www.facebook.com/AnthonyNolan/ Best Wishes, Billie
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Hi Martin, My name's Billie and I work in the patient team. I'm sure if there are patients who've had tops on the forum they will be along to share their experience with you. I'm sorry to hear of your relapse and I understand this must have come as a shock when things were going along well. If you need to talk to someone…
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Hi Laura my name is Billie and I work in the Patient Team. I can only imagine how difficult it must be to be preparing for transplant as you are knowing you aren't going to be able to see your kids for some of your hospital stay. I'm sure some patients will be along soon to share with you their experiences but I just…
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Hi Donna, I'm sorry to hear that your son is having gut issues. Just wanted to say that Hayley, our patient experience team post transplant specialist nurse will respond to your message tomorrow when she is in the office. In the meantime I'm sure fellow patients and family members will be able to offer you some support.…
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Hi Josie, I just wanted to reiterate that the patient team are here to support you. I know you have Chiara's details so please feel free to contact her if you need to, she'd be glad to hear from you. I'm so sorry to hear your news. If we can do anything to help you and your family please let us know. Billie
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Hi Becky, The cost of travel to hospital appointments and parking fees can be a real burden for patients and their families. If you have a look on our website you can find out about grants and financial support that you might be eligible for.…
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Hi Josie, It's completely understandable that your mind is racing while you have to wait for your results and it must have been very scary to have seen your counts drop like that. I'm so sorry. Chiara from the patient experience team has sent you a private message with an offer to get in touch if you'd like to speak to…
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Hi Becky, Thank you for sharing your blog here on the forum. It's great to hear that you have found it therapeutic to write and I know lots of fellow patients like to read real stories of what the transplant journey is like - so you are helping others too! Billie
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Hiya PyB, really lovely to hear from you and glad to hear you are doing well post transplant. If you need anything from the patient team here at Anthony Nolan or have any questions we can help with please get in touch on patientinfo@anthonynolan.org. Also really glad that hearing the experiences of someone of a similar age…
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Hi Michelle, I'm so glad you've found using the forum useful and your father in law's results are moving in a positive direction. If you need anything from the patient team do get in touch - in the meantime I hope he continues to improve. Billie
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Hi Peter, We'd love to welcome you and Mary along! I shall pop you're details on the list and send you more information nearer the time. Have a lovely weekend! Billie
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Hello kw13, Thank you so much for your thoughtful response. It sounds like supporting your husband has given you great insight into managing and coping. I especially like the point about nothing being too silly to ask about if its causing you worry! Great advice. Glad your husband got a lot from visiting the Maggie's…
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Hiya Steve, You will be most welcome! A schedule of the days events will be going out in the next few weeks. Best Wishes, Billie
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Hello Becky, Welcome to the forum. I am the patient and families officer at Anthony Nolan. I wanted to direct to our website where you can find out more information about potential financial help. http://www.anthonynolan.org/patients-and-families/resources-and-information/financial-support We as an organisation also offer…
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Hello everyone, Last post was in September so I thought I'd bump this discussion as it’s been sunny for most of the country this week. Summer is on it's way. What has helped you all to take care of your skin in the summer? Have you found anything in particular that helps with your GvHD? Some people have noticed an…
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Thank you both for your warm welcome! It's appreciated. Peter it is great to hear that exercise was really helpful to you. I can only imagine how effortful the simplest of tasks must have been in the beginning, but it is amazing how taking small steps can set you on the right path to be able to monitor your progress and…