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Liam_at_AnthonyNolan
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Hi Helen, I am Liam, the Patients and Families Manager at Anthony Nolan. I am sorry to hear of the difficulties your son Adam has been having. I wanted to wait to see if any other forum members reached out with their own experiences, but I don't think there isn't anyone here dealing with Chronic Granulomatous Disease. I…
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Hi sjc789. I have spoken with our clinical team and they have advised that you speak with your husbands clinical team for advice on what to do exactly. Without knowing your husbands medical history, it would be difficult to advise what would be best in this situation. All the best
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Hi kamy1302. I am Liam the Patients and Families Manager at Anthony Nolan. Thank you so much for your question. I have passed your question on to our clinical team here and they are aiming to get a response to you on Friday. All the best Liam
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Hi Will, Here is an answer supplied by one of our CNSs, Emily: Hi Will, Thank you for getting in touch. I'm sorry to hear you relapsed 7 years after your stem cell transplant, I can only imagine how worrying this time has been for you. Though, I am glad to hear you're currently in remission on Venetoclax and Azacitadine.…
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Hi Will, Thank you for your question. I will have one of our nurses answer this question for you on Tuesday next week if you are OK to wait until then?
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Hi Beaglegirl, I am so sorry to hear of the loss of your husband, your best friend, Martin. All of us here in Patient Services send you our deepest sympathies. It sounds like you are understandably struggling at the moment. We want to check in with you — do you have support around you right now? Do you feel like you have…
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Hi Beaglegirl, No need to feel sorry for posting. Thank you for reaching out, please remember me and Rachel are available at Anthony Nolan, and you can call us again. We're here for you. Liam
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Hi Beaglegirl. Thank you so much for reaching out on the forum. I am so sorry to hear of what is going on for you and your husband at the moment. If you would like to speak to someone at Anthony Nolan, please call 0303 303 0303 and choose option 3. You can ask to speak to me, Liam. Thinking of you Liam
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HI Grick, I am posting this on behalf of Emily, our Cellular therapy Clinical Nurse Specialist here at Anthony Nolan: Hi Grick I'm sorry to hear about your diagnosis of Angiommunoblastic T-cell Lymphoma, this must be a worrying time for you. Understandably, you may have various questions relating to your diagnosis and…
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Hi DaveT Thank you so much for commenting. I'm Liam, I'm sure you have seen a couple of my comments in the past but I am the Patients and Families Manager here. I asked some of my colleagues around Anthony Nolan if they would have an answer for this question and I have been advised that the best thing to do is ask your…
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Hi Mummahibs, I am Liam, the Patients and Families Manager here at Anthony Nolan. I echo what Dan has said here, I am so sorry to hear of what you and your daughter are going through. I think I would suggest contacting your local MP, but before doing that would you like to speak with our Patient and Public Affairs team as…
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Hi acripps91, I am not sure I understand, is the link that I provided above sending you to an Insurance Broker website? All the best Liam
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Hi acripps91, I'm Liam, the Patients and Families Manager here in Patient Services. I just wanted to share some advice from our friends at Cancer Research UK here: https://www.cancerresearchuk.org/about-cancer/coping/practically/money/life-insurance There may be some helpful information that could shape your search.
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Hi Su0906, I am so sorry to hear of your son's death. I am sending you my deepest condolences. If and when the time feels right, we have some support we can offer you including our Telephone Emotional Support Service. You can email us at patientinfo@anthonynolan.org or call 0303 303 0303 and choose option 3. There is no…
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Hi Wendy – thanks for your comment. I’m sorry to hear that you contracted shingles after your transplant, that must have been really challenging. We would recommend that you check with your medical team whether the Shingrix vaccination would be suitable for you. They will have the fullest understanding of your medical…
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Hi Beaglegirl Thank you for reaching out for support and reassurance. It sounds like this is a really frightening time for you with what is happening to your husband at the moment. Thank you to everyone who has offered their support too. What an amazing community this is. Beaglegirl, if you would like to speak to me, Liam…
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Hi Sarah I am Liam, the Patients and Families Manager at Anthony Nolan. Thank you so much for joining the forum and I hope you find a supportive community here. Welcome! I am sure you will find other forum members sharing their experience with you. But in the meantime please feel free to have a look at the threads and…
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Hi Jasabu. Thank you for posting, as you say yourself, you struggled to post this. I won't say I understand your position but I think you have very important step here. Just to introduce myself, I am Liam and I'm the Patients and Families Manager at Anthony Nolan. I wanted to reach out to you to say, we're here for you as…
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Hi Beaglegirl. I am Liam, the Patients and Families Manager at Anthony Nolan. I am sorry to hear of the very difficult circumstances you are experiencing at the moment. We are here for you. If you would like to get in touch with us you can call 0303 303 0303 and select option 3 to get though to the Patients and Families…
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Hi Adelaie, Just to introduce myself. I am Liam, the Patients and Families manager at Anthony Nolan. Thank you for joining the forum and reaching out to the community though posting here This is predominantly a peer support platform, but I wanted to share some of the resources we offer; firstly our our telephone emotional…
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Hi Pauline I am so sorry to hear of your husband's passing. We try not to post on the forum as much as possible, but on this occasion I wanted to reach out and echo what Steve has said here, we do have resources available on bereavement and if and when you ever feel ready to access them, please get in touch by calling our…
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Hi Audrey, Michelleanne, Helen and Dave I just wanted to get in touch and let you know that we here at Anthony Nolan we offer our telephone emotional support service, not only to patients but families as well.. Find out more about our Telephone Emotional Support Service on our website: www.anthonynolan.org/tess…