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Michelleanne
Comments
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Hi helen You sound a lot brighter and things are a little better that cuppa sounds good with a nice ginger biscuit to dunk night night sleep well❤️
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Morning helen hope all goes well , we’ll have our cuppa and a biscuit about 2 today stay strong lots of love michelleanne❤️
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Hi Dave I don’t do food shopping , we share cooking when I feel like it , hopefully you’ll get sorted soon , never heard from beaglegirl hope things are a little better take care ❤️
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Hi all i don’t rush out of bed early , I try to be positive but sometimes it’s hard but I’m getting there love to all ❤️
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Hi audrey im not surprised at that diagnosis , with what you are going through, my husband goes to play golf , but he doesn’t like to leave me , we enjoy being together watching tv and gardening just chatting we all get through it in different ways the best we can ❤️ hope all is ok with you Dave & beaglegirl take care all…
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Hi helen i wish I could wave a magic wand , to help you , hopefully one day soon ❤️ i get like that at times so frustrated a little cry is always good I think my hormones play a big part of it , we’ll get through this awful time together always here for you take care 🫶🏻❤️
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Hi helen im so sorry to hear how you are , try and not be so hard on your self , you’ve been through so much and are going through so much I know about feeling lonely I do at times even when there’s people there try and find something you can do with your husband takeaway and a movie something that will help you both hope…
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Hi helen we are all survivors , how’s things with you all ❤️
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Hi Helen all went well today given me a low dose of antibiotics and referred to a immunologist Professor very pleased with everything told me not to worry and that I was a survivor ❤️
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Hi helen no news yet I’m in clinic tomorrow , see what they have to say ive had no venesection because my haemoglobin is lower than it should be hope is ok with you all ❤️
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Hi Helen sounds a good plan , you seem to be a bit brighter today hope this continues ill listen to that 😂 ❤️
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Hi all hi audrey Thankyou , you are a true trooper yourself , I’m amazed how you cope 😘 im very grateful to you all for our chats , I also think of you all as firm friends one day we’ll look back at this time as a distant memory 🤞we’re off pumpkin picking in the sunshine with the family then I’ll curl up and snooze…
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Hi all ive got my clinic app next week so see what they say then , I’m taking preventative antibiotics low dose see how that goes I might need to go and see a immunologist we have more hurdles than a athlete lol we’ll get there soon hopefully having a private room does have it’s good points keep strong thinking of you all…
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Hi helen im the same as you love being outside , I’ve haven’t been out for weeks apart from hospital and dr sounds a good idea using your wheel chair at least it will get you out enjoy hope all goes well at the clinic hope you are all ok ❤️
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Hi beaglegirl I’m so sorry to hear about your husband , you will get to do a day out just be patient , I know it’s easier said than done try and take each day as it comes and not rush things it’s a very slow process we all have different challenges I would try and not google as that might make you worry more try and speak…
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Hi Helen Thankyou that’s my aim too ❤️
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Hi audrey thats wonderful news about your daughters biopsy , keep strong you are going through so much with everything I’m back under the consultant team now , which I’m so pleased about I have every faith in them you and your family deserve some peace sending lots of love and hugs ❤️
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Hi audrey hows your daughter doing , my immune system has lowered not sure why so waiting for blood results I’m in a very low mood at the minute can’t be bothered with anything the low dose of antibiotics seem to be helping ❤️
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Hi Helen let’s hope so , I keep my fingers crossed for you too ❤️
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Hi helen nothing more yet , took more blood to check my percentage of donor and given low dose of antibiotics back in 3 weeks see what they say then ❤️
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Hi helen I hope they can get things improved for you I know what you mean about feeling frightened , keep strong ❤️
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Hi helen enjoy to the full whatever you do ❤️
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Hi all I raised my cuppa yesterday at 3 for you all and dunked my biscuit 😂 how’s things going with your daughter audrey has she got her results back I’m still waiting for mine , it’s either a bone marrow top up or something else I fed up of not knowing what I want to eat beaglegirl how’s your husband? stay safe ❤️
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Hi Helen we have to laugh , otherwise we would huddle in the corner and cry my dad always said always look on the brighter side of life ginger biscuits and shortbread cos them you can dunk 😂❤️
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Hi Helen what a lovely thought , kettle on at 3 think we might need a lot of biscuits 😂❤️
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Hi all had clinic app today , had lots of blood taken , to check percentage of donor as my immune system is low , so they want to find out why , I’ve been given a mouth rinse for gvhd in my mouth and throat and also a small dose of antibiotics so see how we go we have random trips out like that , aren’t we a wonderful…
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Hi Dave thankyou , I’m booked in for a lung function test tomorrow if needed , I’ve had a X-ray that’s come back clear no sign of infection see what is said tomorrow , I’m still on my immunosuppressives , I got a top up to give my bone marrow 100% hope you all turn a corner no matter how small stay strong , keep positive 🫶🏻
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Hi Helen & Dave I feel like that at the moment don’t have any energy , I can’t be bothered meeting up with people , I have to go back to clinic on Thursday to see if I have gvhd on my lungs or chest and mouth I do things but them I’m so tired for days afterwards , I’m so boring too i knit or read and spend a lot of time…
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Hi auds i was like Dave you have a few , now I don’t have any , I had to have a top up at the beginning , now they do everything by my blood I hope her results come back ok , then you can make a fuss for one day we celebrate every mile stone it’s a new normal i hope to that helen & Dave find ease soon love to you all ❤️
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Hi audrey my family are the same with me , we keep out of crowded places unless it’s outside i feel like that as if it’s cold , my gp thinks it’s all the treatment it doesn’t bother me , not going out pleased your daughter is doing well,you also in my thoughts are so brave you have been through so much continue in your…