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Michelleanne
Comments
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Hi helen im the same as you love being outside , I’ve haven’t been out for weeks apart from hospital and dr sounds a good idea using your wheel chair at least it will get you out enjoy hope all goes well at the clinic hope you are all ok ❤️
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Hi beaglegirl I’m so sorry to hear about your husband , you will get to do a day out just be patient , I know it’s easier said than done try and take each day as it comes and not rush things it’s a very slow process we all have different challenges I would try and not google as that might make you worry more try and speak…
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Hi Helen Thankyou that’s my aim too ❤️
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Hi audrey thats wonderful news about your daughters biopsy , keep strong you are going through so much with everything I’m back under the consultant team now , which I’m so pleased about I have every faith in them you and your family deserve some peace sending lots of love and hugs ❤️
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Hi audrey hows your daughter doing , my immune system has lowered not sure why so waiting for blood results I’m in a very low mood at the minute can’t be bothered with anything the low dose of antibiotics seem to be helping ❤️
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Hi Helen let’s hope so , I keep my fingers crossed for you too ❤️
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Hi helen nothing more yet , took more blood to check my percentage of donor and given low dose of antibiotics back in 3 weeks see what they say then ❤️
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Hi helen I hope they can get things improved for you I know what you mean about feeling frightened , keep strong ❤️
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Hi helen enjoy to the full whatever you do ❤️
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Hi all I raised my cuppa yesterday at 3 for you all and dunked my biscuit 😂 how’s things going with your daughter audrey has she got her results back I’m still waiting for mine , it’s either a bone marrow top up or something else I fed up of not knowing what I want to eat beaglegirl how’s your husband? stay safe ❤️
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Hi Helen we have to laugh , otherwise we would huddle in the corner and cry my dad always said always look on the brighter side of life ginger biscuits and shortbread cos them you can dunk 😂❤️
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Hi Helen what a lovely thought , kettle on at 3 think we might need a lot of biscuits 😂❤️
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Hi all had clinic app today , had lots of blood taken , to check percentage of donor as my immune system is low , so they want to find out why , I’ve been given a mouth rinse for gvhd in my mouth and throat and also a small dose of antibiotics so see how we go we have random trips out like that , aren’t we a wonderful…
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Hi Dave thankyou , I’m booked in for a lung function test tomorrow if needed , I’ve had a X-ray that’s come back clear no sign of infection see what is said tomorrow , I’m still on my immunosuppressives , I got a top up to give my bone marrow 100% hope you all turn a corner no matter how small stay strong , keep positive 🫶🏻
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Hi Helen & Dave I feel like that at the moment don’t have any energy , I can’t be bothered meeting up with people , I have to go back to clinic on Thursday to see if I have gvhd on my lungs or chest and mouth I do things but them I’m so tired for days afterwards , I’m so boring too i knit or read and spend a lot of time…
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Hi auds i was like Dave you have a few , now I don’t have any , I had to have a top up at the beginning , now they do everything by my blood I hope her results come back ok , then you can make a fuss for one day we celebrate every mile stone it’s a new normal i hope to that helen & Dave find ease soon love to you all ❤️
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Hi audrey my family are the same with me , we keep out of crowded places unless it’s outside i feel like that as if it’s cold , my gp thinks it’s all the treatment it doesn’t bother me , not going out pleased your daughter is doing well,you also in my thoughts are so brave you have been through so much continue in your…
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Hi helen i agree it is good to hear from Dave it’s being a while, you sound very upbeat , we don’t go anywhere without my mask I hope they can sort my chest out soon my fatigue is bad too and my appetite mouth gvhd doesn’t help keep going at least we’re here take care ❤️
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Hi all we still wear our masks if we go out , still very careful where we go , it doesn’t bother us going out never been in a pub for 3 years not interested , we like to go outside in the fresh air , had my chest X-ray back it’s all clear , another course of antibiotics and more steroids as it’s like having a infection ,…
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Hi beagle girl that’s good news apart from the gvhd, that’s something to look forward to enjoy keep strong happy improvement ❤️
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Hi audrey i hope they can sort it out , see what they have to say on my next app i do hope it doesn’t go on her chest , get it checked straight away if theres signs you look after yourself it’s lovely to hear from you and how your daughter is ❤️
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Hi audrey you are going through tough times , just the same as us , I don’t know how you cope with what happened to your son , then your daughter , it was a great thing your son did to help other people ,he will live on in them it’s shocking you have to wait so long for a court case here for you all always , stay strong…
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Hi Helen pleased to hear your head is in a better space , that’s a good start , hope they can sort out your legs and feet , my chest X-ray has come back clear so see where we go next love to you all ❤️
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Hi Dave & all sorry to hear you are struggling still , it must be so so hard , I hope you can get some help soon always here ❤️
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Hi auds i had constant infections in hospital , you do have to have a lot of patients , and a lot of faith in those people who look after you I just do what I’m told to do or try we’re so overjoyed to hear how well you and yours are doing , you have been through so much and are hopefully out the other side Thankyou so much…
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Hi audrey its so good to hear about your daughter , it’s great news I’m so happy for you all youre right about life’s journey being full of up and downs helen & Dave hope you are feeling stronger ive had 2 chest infections since February had antibiotics now steroids X-ray on Thursday hope they can get to the bottom of it…
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Hi audrey that is good news about your daughter , where’s that year gone I hope that you helen , Dave are doing aswell as can be , thinking about you all always , it’s 3 years tomorrow since I had my bmt , I’m very grateful to you all , for your support and kindness I also think of you as friends stay safe , stay strong…
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HI all always here for everyone ,when and if needed thinking of you all always ❤️
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Hi beagle girl how are things going , hope you get some news soon stay strong ❤️
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Hi beagle girl that’s a good sign , see what these tests find stay strong ❤️