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Michelleanne
Comments
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Hi helen i agree it is good to hear from Dave it’s being a while, you sound very upbeat , we don’t go anywhere without my mask I hope they can sort my chest out soon my fatigue is bad too and my appetite mouth gvhd doesn’t help keep going at least we’re here take care ❤️
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Hi all we still wear our masks if we go out , still very careful where we go , it doesn’t bother us going out never been in a pub for 3 years not interested , we like to go outside in the fresh air , had my chest X-ray back it’s all clear , another course of antibiotics and more steroids as it’s like having a infection ,…
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Hi beagle girl that’s good news apart from the gvhd, that’s something to look forward to enjoy keep strong happy improvement ❤️
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Hi audrey i hope they can sort it out , see what they have to say on my next app i do hope it doesn’t go on her chest , get it checked straight away if theres signs you look after yourself it’s lovely to hear from you and how your daughter is ❤️
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Hi audrey you are going through tough times , just the same as us , I don’t know how you cope with what happened to your son , then your daughter , it was a great thing your son did to help other people ,he will live on in them it’s shocking you have to wait so long for a court case here for you all always , stay strong…
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Hi Helen pleased to hear your head is in a better space , that’s a good start , hope they can sort out your legs and feet , my chest X-ray has come back clear so see where we go next love to you all ❤️
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Hi Dave & all sorry to hear you are struggling still , it must be so so hard , I hope you can get some help soon always here ❤️
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Hi auds i had constant infections in hospital , you do have to have a lot of patients , and a lot of faith in those people who look after you I just do what I’m told to do or try we’re so overjoyed to hear how well you and yours are doing , you have been through so much and are hopefully out the other side Thankyou so much…
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Hi audrey its so good to hear about your daughter , it’s great news I’m so happy for you all youre right about life’s journey being full of up and downs helen & Dave hope you are feeling stronger ive had 2 chest infections since February had antibiotics now steroids X-ray on Thursday hope they can get to the bottom of it…
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Hi audrey that is good news about your daughter , where’s that year gone I hope that you helen , Dave are doing aswell as can be , thinking about you all always , it’s 3 years tomorrow since I had my bmt , I’m very grateful to you all , for your support and kindness I also think of you as friends stay safe , stay strong…
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HI all always here for everyone ,when and if needed thinking of you all always ❤️
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Hi beagle girl how are things going , hope you get some news soon stay strong ❤️
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Hi beagle girl that’s a good sign , see what these tests find stay strong ❤️
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Hi beagle girl I’m sorry to hear about your husband , I’ve never experience this I hope they can help you , when will you find out any news thinking of you ❤️
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Hi helen thankyou it’s taking ages , gets me down hugs to you all 🫶🏻
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Hi helen my chest is a little better , think it’s more viral hope all is well with everyone ❤️
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Hi all helen , I think as long as we follow guidelines and drs advise on medication I would take all the help I could get , hope all went well in the clinic and your other app beagle girl , your husband sounds like he is in a good place if he can help you , I’m just starting to do that now , my mind plays tricks on me also…
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I’ve tried all that , I’ve enjoyed snuggling in bed with my book hope your chat with your friend helped a lot ❤️
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Hi Helen I’ve just had another venesection outs left me very tired , I also have a bad chest apart from that I’m ok ❤️
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Hi all helen I really hope they can get help for you it is so hard but try and stay positive always here for you 🤞❤️ hi beagle girl is good to hear the slight improvement in your husband , this awful illness we go through effects our mind and body , tell him not too be so hard on himself , I’m exactly the same it’s…
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Hi helen I’m so so sorry to hear of your struggle I really hope they can find something to help keep strong ❤️
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Hi helen im so sorry to hear your news , let’s hope you can get sorted with some other treatment thinking of you stay strong ❤️
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Hi all audrey , I’m so pleased to hear your daughter is doing well , this illness effects all your body and mind , I think it helps once we have come to terms with the new person we are and what we have and are going through it makes a big difference it’s 3 years in august since I had my bmt I’ve never been taken off my…
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Hi Helen Pleased to hear about your therapist , the one I had was a god sent to us im still on my immune suppressants I’m on them constant maybe for another couple of years hope they help you ❤️
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Hi all helen I’m so glad you’ve had a good day , dave so sorry to hear you are still having bad days , wish I could wave a magic wand to help you keep strong , have you had someone to talk to it may help you through things , I know it helped me best wishes ❤️
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Hi all thankyou for your best wishes , I’m so sorry to hear you are both still feeling rough I wish I could give you a big hug , keep positive , keep strong always in my thoughts and prayers ❤️
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Hi all dave , I’m so sorry to hear that things aren’t going so well , I hope and pray you get some improvement soon , I too have muscle tightness my g.p has given me compression stockings , they aren’t the most flattering of things , but they make us laugh . im having a few issues with my blood , so having regular tests at…
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Hi all it is a very hard journey we go to get through this, our bodies and minds go through so much trauma , when we have all the tests before and afterward the waiting is the worst part all you do is try and think positive I know it’s easier said than done I had to have a top up from my donor to get my levels right , the…
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Hi beagle girl you have a lot of good times to look forward too with your husband , if he’s like me it’s just a slower pace and a totally different way , calmer , peaceful and so content , it doesn’t bother me going shopping , I enjoy being outside ,I feel at this moment even on a bad day I can take on the world I wish you…
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Hi audrey lovely to hear from you I totally agree with what you say , you need to have faith in you’re medical team , how’s you’re daughter doing , hope she is doing better it is like been on a roller coaster that’s why I take each day as it comes and enjoy life even on hard days 🥰