Please read the house rules and keep this community safe for yourself and others.
Michelleanne
Comments
-
Hi beagle girl I never look anything up as it frightens me , that news is wonderful I’m so pleased for you both , now give him a big hug and have a good cry of relief enjoy each day , always here if needed take care ❤️🫶🏻
-
Hi I totally agree with you helen , thinking of you both keep talking and loving yourselve I’m praying for you ❤️
-
Hi i can only imagine how you feel I also cried a lot , when I went through it , is there no one else you can talk too , try and stay in the moment I know how hard it is deep breath and try and talk and think how you’re husband is feeling I bet he will be feeling just like you thinking of you both keep strong ❤️
-
Hi beagle girl dont be sorry for jumping in , these chats are for everyone so sorry to hear about you’re husband I don’t understand numbers and levels , I can’t help with medical issues , but I will listen and support you i pray and hope things go ok , take each day as it comes try and enjoy each day I send you all my love…
-
Hi helen i hope you all get in a happy place always here to chat ❤️
-
Hi Helen it is a good job there is good ones, he is a lovely g.p trained in the cancer unit so he understands and is very compassionate and reassuring which is what we did at times I’ve being given compression stockings to wear for a couple of weeks see how I go I walk like that round the house and garden then sit and sit…
-
Hi all hope you are feeling as well as can be I was so annoyed because at the beginning she had no problem with my weight , wish I still had consultant led in instead of nurse team saw my g.p he said I have bad circulation in my legs and arthritis in my hip he said not surprising with what my body has gone through , I…
-
Hi Helen hope you feel more settled soon , it’s not nice to share a room like that , you would think they would be on their own . I agree with that saying I feel like one day I’m so good then next day I’m back to feeling awful can’t win the pains and swelling in my legs are starting again mentioned it at clinic told to see…
-
Hi all dave I’m so sorry to hear you are still struggling ,I hope this round helps you 🤞it makes me sad to hear you sound so down , I would try and have a serious chat with some helen I also hope you get ease with things soon it’s so hard audrey I hope all goes well with you’re daughters biopsy this is a very uncomfortable…
-
Hi Dave it’s lovely to hear from you , I hope you get some ease from this treatment soon hope you start to have brighter days soon i feel I’m doing ok at the minute just do what I can when I can I still have very hard days but I try not to let it get me down take care always here to talk ❤️
-
Hi all helen I’m so sorry to hear things aren’t getting any better , hope they find something that will help I use a ointment that’s like Vaseline to wash and use as a moisturiser it’s the only thing that helps I also have drops for my mouth when that’s sore I’m still on all my meds they say maybe 5 years before they think…
-
Hi All we are here for all on this group , it is such a cruel illness and the recovery is very slow we have to take one day at a time and have faith in those that care for us the medical staff know what they are doing keep talking always here I know it helps me so much ❤️
-
Hi helen its holiday weekend here , and the sun is shining the weather has been lovely for a couple of weeks , I feel in my mind very positive so I hope this continues still got all of my other problems , I’m at clinic next week so see what they have to say you sound very positive , hope this continues and you’re skin…
-
Hi audrey lovely to hear from you I totally agree with what you say it’s so hard for everyone patients and loved ones alike I can’t even imagine what as a family you have been through with loosing you’re son then you’re daughter I don’t know hope you have coped I’m in awe of you 🥰 I think everyday of my happy place even on…
-
Hi helen pleased to hear it’s brought you all closer as a family , it has with us also , but sometimes a feel lonely don’t know if that’s with 8 months in hospital hope you will be home soon keep enjoying the birds singing keep safe and take care ❤️
-
Hi all helen I think this illness to effect emotionally just as much as our mind and body it’s a very big change to our lives ,some people manage better and quicker than others I glad you feel comfortable to talk about things it’s as good as therapy lol and if it helps us all do it audrey you have been through a dreadful…
-
Hi dave im so sorry to hear , you wife is not with you that is awful , I can’t imagine how that feels maybe talking to someone will help put things in prospective I know it helped me and it give me peace of mind I don’t want to know what’s going to happen in the future , I live in the present otherwise I worry you will get…
-
Hi all helen hope all goes well tomorrow and you soon get help with your skin , to all we will all get there together in our own way & at different times always here for you all , no matter how bad you feel you are never alone hope you never forget that life is so different , it takes a lot to come to terms with I can’t…
-
Hi all dave you are a fighter too , don’t be so hard on yourself , think of what you have been through , I don’t go on Facebook or anywhere else to read about my illness I take it as it comes , I don’t want to know what can come or how things will be I just take one day at a time other wise it would frighten me and that’s…
-
Audrey i meant to say what a amazing thing you’re son did for other people and your other daughter helping too ,I bet you are so very proud ❤️
-
Hi audrey i wouldn’t want to leave my daughter , even in good hands , I know I can’t manage a holiday , so we’re having a day trip on the flying Scotsman with lunch in the Pullman carriage on our way to Edinburgh hope you are ok helen michelleanne❤️
-
Hi dave i hope so , look forward to a nice holiday , where would you go ? We haven’t had a proper holiday for years I couldn’t manage a cruise now , we bought a holiday home so we are there regular , and I’m content with that , and we are having a trip on a steam train for the day in September as it’s our 40th wedding…
-
Hi Dave that’s good news , I hope you do 🤞🤞🤞I bet you feel better knowing that hope all goes ok michelleanne
-
Hi dave i had bad mottled skin no open wounds , my skin is dry , tight I use hydromol ointment it’s like Vaseline for washing and as a moisturiser my eyes are dry and gritty , my legs feel like a balloon that is over stretched they are painful from the knee down but I am very lucky to be here , so I soldier on otherwise…
-
Hi dave its so nice to hear from you , I’m so sorry you haven’t being feeling better you will get there one day at a night , I am doing a lot better than you and Helen , things are so different than before , but I can cope in my own way i had counselling from a lovely lady from McMillan nurses she was so lovely and helped…
-
Hi all helen I’m so sorry we are struggling at the moment I hope they can help you and you feel stronger soon pleased you had a nice weekend , we did but also exhausting had our daughter and granddaughter staying with us at our holiday home love the dearly but I get so tired I don’t class myself as a hero , the people who…
-
Hi audrey your news about you’re daughter is great , it’s so wonderful to hear better news from everyone Dave I hope you are ok ? audrey this group is for patients and family so you are included , it’s a great relief for me to hear everyones progress as it helps me so much , I still lateral flow tests , and wear a mask…
-
Hi all helen so pleased you got a boost , the classes sound good we don’t have anything like that , but we are very rural, see what your gp has to say about that system , you seem very organised with you’re sclerosis we all find things that help in our own way . my eyes have started to ache , dry and sore on trying eye…
-
Hi all helen I hope everything goes ok , thinking of you keep strong lots of love & best wishes audrey hope you’re daughter is doing ok hope things are improving slowly , hope you are well too hi Dave haven’t heard from you in a while hope you are ok don’t ever forget you are never on your own I’m still getting over my…
-
Hi helen thats good news , hope all goes ok and you feel a little better , afterwards I’ll be thinking of you hope all is ok with you Dave & audrey have a lovely weekend love michelleanne